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Replying to New Haven Area

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Posted 18 November 2014 - 12:58 AM

Did this ever end up happening?

Posted 29 September 2014 - 02:45 PM

HELLO Narcoleptics!

Ed is in the process of making arrangements for a support group meeting in New Haven for early November - he would like to hear from you - who is interested in coming???


Posted 24 June 2014 - 11:37 AM


It doesn't look like any of you have actually gotten together to meet.


Is there a cost to reserving a room at the library? If no...

If you pick a weekend date, a couple of us from MA/RI could come down to help you all get started.

All you have to do is reserve the room. Find out a few dates that are available.

Once that is done the rest will come together.


Posted 24 May 2014 - 11:15 AM

The New Haven public libary downtown has great meeting space and I would be happy to reserve a room to set up a meeting for any who would like to start a New Haven area group. I started a group on Facebook called Greater New haven Narcolepsy forum - if you have interest, go there and join the group. Once we start this going the next step can be a live meeting.










Parking is on the street so being a few bucks in quarters.

Posted 22 May 2014 - 05:51 AM

My 20 year old son was recently diagnosed and feeling very "out of place" among his peers- I would welcome he get involved. We are in Woodbridge. I am going to mention this forum to my wife and he. If he wishes I will be happy to help you organize a meeting. I run associations and set up events for my work, so I could probably do this for you quickly and at no charge.

Posted 20 May 2014 - 10:07 AM

I would also really like to know if there is an active group, I'm a student in New Haven.


If not I highly recommend someone start one up, perhaps meetup.com would be the best way to connect. 

Posted 14 May 2014 - 05:02 AM

Hello, I live in Meriden and could use support. Is there an active group? Much thanks!!

Posted 06 August 2013 - 12:05 AM

I am 33 y/o woman with N. I live near Hartford but can get a ride to the New Haven. Is anyone having groups or meet-ups?

Posted 18 June 2013 - 02:27 AM

OMG I hope you guys are still out there. I'm in Stamford and in desperate need of face to face/ phone support or just talking .

Posted 29 November 2012 - 08:45 AM

I live in East Hampton and I have a 14-yr-old son with narcolepsy. I am interested in meeting with other parents and their children.

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