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Replying to Support Group In Or Around Sf Bay Area


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daffodil225

Posted 17 May 2015 - 10:08 AM

Hey, I'm 23 and from the marin/sonoma area, and would love to talk to someone who relates to all this :( I'm also in the Davis area the next couple weeks finishing up school 


Posted 06 May 2015 - 12:43 PM

Oh btw i have hypersomnia. But i think the narcs and the hyps can benefit from each other.

Posted 06 May 2015 - 12:42 PM

Im willing to start one if someone is willing to help. Im sure i can get a room at kaiser in santa rosa and probably can have my sleep doctor help us with the first few meetings. Anyone interested email budandcelia8373@gmail.com

Posted 22 December 2014 - 01:29 AM

I live on the Peninsula and am definitely interested! Please keep me updated on any future meet-ups: kendahlia@gmail.com.

doinmdirndest

Posted 04 November 2014 - 02:00 PM

i'm interested, and i'll come from napa to be there when we meet.  keep us posted.


Posted 04 November 2014 - 11:36 AM

Hi, This is Debra. I live in San Jose/Santa Clara area. I was diagnosed last February of 2014 with N. I am disgusted that it took so long to be diagnosed. I am a registered nurse. I never considered N as a possibility due to the extreme way it is usually described by so called experts. I am organizing a Silicon Valley Narcolepsy Awareness and Support group. The mission being to provide education about the spectrum of what Narcolepsy looks like, not just the extreme cases, and to provide a support group for those with Narcolepsy in the Bay area. I have no idea how many we are. I am currently checking out possible places to meet. Possibly a Kaiser hospital would lend a meeting room. Please post something here if you are interested.

Posted 04 November 2014 - 11:34 AM

Hi, This is Debra. I live in San Jose/Santa Clara area. I was diagnosed last February of 2014 with N. I am disgusted that it took so long to be diagnosed. I am a registered nurse. I never considered N as a possibility due to the extreme way it is usually described by so called experts. I am organizing a Silicon Valley Narcolepsy Awareness and Support group. The mission being to provide education about the spectrum of what Narcolepsy looks like, not just the extreme cases, and to provide a support group for those with Narcolepsy in the Bay area. I have no idea how many we are. I am currently checking out possible places to meet. Possibly a Kaiser hospital would lend a meeting room. Please post something here if you are interested.

doinmdirndest

Posted 30 September 2014 - 01:16 AM

i am told there is on the average but 1 narcoleptic in a city the size of reno, nevada, pop. 100,000 or so. i don't know how accurate this may be, yet if it's true it would explain much.

allison_flutegal

Posted 29 September 2014 - 11:47 AM

Sorry for the double post, it posted me as a guest. I have an account my name is: allison_flutegal (just in case this also shows up as guest, despite logging in again)

 

Hello all! I am a little late joining this convo but it seems to still be moving along. I am a PWN and C. I noticed one member in particular is near me...Guest_Michelle...I hope you still read this. Please send me a message about getting together. I live in San Mateo, and Belmont would be very easy for me to get to. I actually say I live in Bel Mateo   :P

 

For everyone else, I am still willing to find ways to meet up. I was diagnosed in May and definitely having a hard time adjusting sometimes. 

 

 

I am honestly SO surprised there isn't more information, organizations, and support groups in our area about our diseases considering Stanford is here on the peninsula and leading (if I am not mistaken) on sleep study research.


Posted 29 September 2014 - 11:46 AM

Hello all! I am a little late joining this convo but it seems to still be moving along. I am a PWN and C. I noticed one member in particular is near me...Guest_Michelle...I hope you still read this. Please send me a message about getting together. I live in San Mateo, and Belmont would be very easy for me to get to. I actually say I live in Bel Mateo  :P

 

For everyone else, I am still willing to find ways to meet up. I was diagnosed in May and definitely having a hard time adjusting sometimes. 

 

I am honestly SO surprised there isn't more information, organizations, and support groups in our area about our diseases considering Stanford is here on the peninsula and leading (if I am not mistaken) on sleep study research.

 

 


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