Doc thinks it's narcolepsy, I think she's wrong.
Posted 26 October 2007 - 01:15 PM
I tell my doc all this, hoping to maybe get a better sleeping pill and instead she gives me a referral to see a neurologist! Doesn't this seem a little alarmist and an overreaction? After reading a bit on narcolepsy, I don't seem to have any other symptoms other than the excessive daytime sleepiness. So could it really be narcolepsy then? Has anybody else experienced this and what was the outcome? Thanks and I hope you're all having a great day!
Posted 04 November 2007 - 11:29 PM
Posted 05 November 2007 - 06:56 PM
Posted 19 November 2007 - 07:35 PM
Posted 27 November 2007 - 12:51 AM
Posted 19 April 2008 - 12:21 AM
Again, that is all to the best of my knowledge and recollection from reading the "Bible" of sleep disorders today (I swear that thing weighs at least 25 lbs.)
Posted 23 April 2008 - 01:46 PM
So, I would detox, eat and drink healthy, as much as you want, if you have to have somehhing naughty, have it just before bedtime, if possible, but sometimes the food additives kick in with the next meal so you never know what triggered the sleeping. If I have cereal, it has to be at bedtime.
What puts me in a strong sleep, unfortunately, is cereal, oatmeal, some breads, a lot of packaged goods and canned with preservatives - I specifically know a couple that I can look for on the label and thus avoid. It's not the sugar, cause chocolate cake doesn't make me sleepy. I even react to a particular preservative used in a famous cooking oil.
If I drink 2 cups of black coffee, I go to sleep about 11AM, or at least my eyes want to go to sleep. They get hot and burny and the desire to sleep is absolutely overwhelming. I used to drive - no more, too dangerous - I fall asleep crocheting and even on the internet, which is what I do for a living so I really have to be careful with what I eat.
I do know that, if I could sleep at night more than 1-1/2 hrs without waking up, I generally feel better the next day and am definitely less susceptible to the sudden sleeping. But when I take 1/2 a tylenolPM, which helps me sleep past 3-4 hrs without waking, I am still a little tired next AM but I have noticed I feel better and am more cheerful when I sleep 4-5 hrs without waking up and if I sleep past that 4-5 hr mark, I have less joint and muscle pain (unrelated to narcolepsy). This narcolepsy is definitely a sleep disorder.
I often thought it might be related to epilepsy, who knows.
Anyway, I just joined up and look forward to this community.
I forgot to mention, definitely see a doctor. This can be life threatening, especially when driving or using equipment and around the home. I fell asleep after drinking cherry juice (for my health), the doorbell rang and I was disoriented then fell down the stairs and my head rent thru the main beam in the wall, then my hip and I never recovered physically, so this can be very dangerous. A little country doctor diagnosed me 21 yrs ago and all the big city docs with all the fancy equipment and labs, did not.
Posted 23 April 2008 - 08:40 PM
I would suggest first making a journal of what you eat without changing your diet and then see a nutritionist to see what improvements s/he may suggest. This is where I differ from jeanette because I think you should see the nutritionist before changing up your diet. It's harder to give input on a more recently acquired diet .
Posted 24 April 2008 - 12:49 AM
Keep Well and Pleasant Dreams,
Rachel Russell from Texas!
Posted 13 May 2008 - 03:45 AM