Posted 14 January 2008 - 11:40 AM
Posted 11 February 2008 - 12:03 PM
Posted 12 February 2008 - 11:20 AM
Posted 19 February 2008 - 10:46 PM
The maximum dosage is 400mg a day. That is what I take and I wish there was something else out there, though I am thankful for Provigil.
Posted 24 April 2008 - 12:59 PM
I know what you mean.
I am now up to 400mgs of Provigil and see absolutely no difference. I was wondering, since it has only been a few days, if it takes a while for the drug to keep you awake? I read somewhere on the forum that there is some kind of productive wakefulness during the first couple of weeks and then not so much. Should I see a difference yet?
Posted 27 April 2008 - 02:29 AM
Posted 21 May 2008 - 03:37 PM
Anyone notice this?
Posted 21 May 2008 - 06:10 PM
Posted 15 July 2008 - 08:06 AM
Think of it this way.
Babies sleep 8-12 hours a night.
No matter what time they wake up, and no matter the quality of sleep, they are ready to take their first nap of the day within 2-3 hrs of awakening in the morning sleeping anywhere between 20min - 3hrs. They are ready for their second nap about 4hrs after waking from the first.
Now apply this to an older infant on that is more curious as to his enviorment is more independent and mobile. They are able to stay up longer because their mind is busy flashing synapses and processing new information; which leads them to fight sleep. They fight it long enough and you as their caregiver ignore the signs you have an over tired, cranky, inconsolable child in your hands.
Flash to adult hood.
The KEY is to KNOW YOUR LIMITS.
We all know when sleep attacks are coming.
We all know that passive environments are no good, especially if you've been awake for a while.
We all know that medications help, but the psychological belief in them helps as well.
Staying active helps. I have found that if I come home from work and sit down infront of the TV it's all over... wake me in the morning. I work in a super busy enviorment and the only time I have to my self is my break.
You must keep your brain stimulated through out the day.
But unfortunetly we live in a society that does not understand this disorder, and we have to advocate. For ourselves, and for others.
And in true Narcoleptic style my short term memory sucks and I forgot where I was going with this... lol...
Posted 15 July 2008 - 08:07 AM
Anyone notice this?
AGAIN no matter what medicine you are on you still need to take naps.,
Posted 15 July 2008 - 08:55 AM
i feel the same way it does help keep me focused but nothing for staying awake i want my desoxyn back
Posted 18 July 2008 - 06:10 PM
Oh, what is desoxyn?
Posted 24 July 2008 - 12:40 PM
I was just diagnosed last week and was prescribed Provigil, 200mg at 6 am and again at 12pm. The first day seemed great... and that was it. Everyday since then has been filled with adverse side effects like you stated above. I have severe tremors, my jaw muscles clench to the point they feel almost locked up, and my shoulders and lower back spasm. I went to see a friend of mine who is a chiropractor and has an in office massage therapist and they could not believe the effects this drug seemed to have on my muscles. On top of that I get the sweaty chills and dry mouth like crazy! I have tried reducing the dosage significantly (now taking 1/2 a pill in the morning only) and it all still continues. I do notice a slight difference in my level of alertness (about half of the time, the other half seems like no change), but the side effects have left me wondering if the small difference is worth it. I stick to a very strict sleep schedule, take at least one nap every evening after work - short naps don't seem to help me, wake up feeling like I was hit with a ton of bricks. I have no trouble sleeping at night, or at any other point in the day... if I'm not moving, chances are I'm sleeping.
I have a call with my doctor tomorrow to discuss other possible treatments, however everything I have read/researched says that Provigil is one of the best, with the least side effects. Did anyone else experience something like this at first, and then it stopped? Has anyone else had any luck with other medications?
Posted 25 July 2008 - 12:21 PM
I have also been taking antidepressants since 9th grade, so 1999. This summer my doctor suggested I go off of the antidepressants... I was scared, but I did it.
Apparently antidepressants limit your REM sleep, so my doctor thought maybe I just wasn't getting enough "quality" sleep at night.
So far I'm not depressed!!! I did notice a huge difference in my sleepiness. I'm not as tire during the day, so I think this could be an option for people.
Do NOT quit the antidepressants without talking to your doctor first though! I hope this can help some of you. Good luck.
Posted 29 July 2008 - 07:26 PM
I to have been on proivigil and was also straight up to 400mg for me there wasn't much change maybe felt a bit more awake for the first half hour of taking it. This quickly went to not even working.
so that did not work as well for me as others.
I am currently on dexidrine 8x a day and this is getting less effective at the moment.
Posted 30 July 2008 - 03:06 PM
I take 400mg a day.I suppose to take 200 in the morning and 200 in the evening but i take 400 in the morning and thats it.I can do more things but i do fall a sleep at least once or twice during the day.
Posted 22 August 2008 - 04:11 AM
Any suggestions? Is any one else out there on that much Provigil? My PA says she dosn't know any one on 1200mg of Provigil, but they percribed it to me anyway.
Posted 22 August 2008 - 05:25 AM
People with Narcolepsy have both Excessive Daytime Sleepiness AND Fragmented Nighttime Sleep. (Some have Cataplexy, too).
Treating the Excessive Daytime Sleepiness with a stimulant like Provigil or Ritalin or Desoxyn - or combinations of stimulants - only treats half the problem. It might jolt you into some measure of alertness during your awake time, but it doesn't do anything to pull you out of the sleep debt you still have from a crappy night's sleep.
He feels very strongly that in order for someone with Narcolepsy to be in balance, they need to treat both sides of the equation. This means they also need to take something to improve their nighttime sleep.
Xyrem is a medication that can help improve nighttime sleep. There are also various benzodiazepenes (anti-anxiety drugs, basically) that can help with sleep as well. By improving sleep at night, you have less sleep debt going into the day and the stimulants can be more effective.
This worked for me. I was on Provigil 200 mg 2x day and still had breakthrough sleepiness, so I was also on Ritalin 2x/day. Once I started on Xyrem at night, I didn't need the Ritalin anymore during the day (still need both doses of Provigil).
Since we all have different chemical makeups, Provigil might not be the "right" stimulant for everyone. But regardless of whether we take Provigil, Nuvigil, Ritalin, Dexedrine, Desoxyn, whatever -- we have to balance it with better sleep at night as well.
Posted 22 August 2008 - 05:52 AM
Amphetamines is no more dangerous than Provigil but because of the stigma attached to it, doctors are paranoid in prescribing.
In fact Amphetamines has been for me - the safest, friendliest medicine so far with the least side effects. No tolerance building. The only downside is that Amphetamines are very short acting and pretty mild @ 5mg.
I can't go back to Provigil because I've seemed to develop some allergic reaction to it. Unless I am pretty strong and healthy - I choose not take it. I did once in a wedding in Brazil and it helped me on that odd occasion remain wide awake and enjoy the party. Also used it in a TV commercial in Brazil, again it worked well.
So maybe just maybe Provigil shouldn't be taken religious every day because it isn't that sort of drug. Unlike Ritalin which feels OK (for me) to take daily.
But Provigil could be saved for those odd or more necessary occasions. If you do that - you wean yourself from the drug a bit, bring down it's tolerance and reap it's benefit when you really really need it.
I think N's should start a petition in the UK so we can get hold of it. As far as I am aware it is pretty hard (if not impossible) to get prescribed.
Any UK person knows more about this?
I've been having really bad sleep recently - it is pretty much destroying me.