First topic: http://forums.narcol...breaking-point/
EDIT: Need help reading new situation:
Also, question to everyone, my dad and mom has decided to take it upon themselves to call my doctor (I'm 21, so I don't see how they did this without my permission when I didn't give them consent in any paperwork), and make an appointment to "talk" to him about what I need to do, and to tell them that when I told him I try to go to bed at 11pm and I try to wake up at 7am, that I don't really do that (I told the doctor I tried, seeing as how I work at 8am, and school at 830am on other days). And that I smoke e-cigs sometimes. And I don't exercise that much at the moment (but I did in the past). They are only going to try to prove the doctor wrong, and that I don't really have it. I think I am going to cancel the appointment, or at least express to the doctor that I want all my information to remain confidential and not be discussed. What should I do? I emailed my parents, and told them that I think I am going to cancel it, but that I will see a counselor, and afterwords they can see that same counselor. Would that be appropriate?
So, here I am again. I'm very bad at keeping things brief, so I apologize if this ends up being longer. I'm tired now, so my thoughts might not be as connected either. I'll try.
As of recently, I feel a little better. I lost my job at the doctor's office without a warning. I guess it was just one time too many. But, he / she was also scamming patients and I refused to cut lenses / charge patients' amounts that weren't correct, so there was that tension at the end of my line of work with him / her. It's hard for me to just sit by when stuff like that is happening. But the main reason was probably being late on a busy day. I tried, that's what counts.
In terms of my mood, I've been sort of in the same spot as last time, but I feel less sick. So I am happy about that. I see a highly ranked psychiatrist soon, and I am trying to make more appointments as well with neurologists and such.
Here is why I come to post this new topic.
I just received an email that really upsets me. I can't remember if my last topic had stated, but I am 21 years old. I did live by myself from 18-20, and moved in when I switched universities as the university I was attending didn't have my major. Seemed like a good way to make money. I live with my dad, and my mom lives with my brothers about 30 minutes away. I have been staying there mostly, now.
But, I digress. I just received an email from my dad stating that he thinks I could be manipulating school, doctors, and family members, into thinking I am narcoleptic for certain advantages, when I really don't. In fact, my parents recently had a meeting with me in which they told me that they know I don't have narcolepsy, and that the sleep studies are not accurate at all. I am not a rude or rebellious person, and you'll have to take my word on that. I've been praised for my manners all my life. I hate disrespecting others, and it hurts to think that now my family members, dad specifically, thinks I am faking narcolepsy. I don't know what to do. My mom bought me a shirt saying I'm only lazy when I'm awake, and I think / know she meant it to be funny, but I can't laugh at it when I know she doesn't take anything I say seriously in terms of anything regarding narcolepsy, sleep studies, and the like.***
Is there some good links to provide to help educate my family (nicely, not in a rude way?). They seem to think that all sleep studies are bogus, and don't tell anyone anything in terms of medical conditions. The only one who believes me in my family is my closest in age brother (older than 18).
I never saw myself in a situation where certain family members would be against what I am saying so much.
*** = Nothing was found conclusively in my overnight test. During the 5 nap test, I had an average of 4.6 sleep latency but only because I had a MAJOR headache on the last nap which boosted up. Otherwise, I would have a 2.5 sleep latency. And I entered REM sleep instantly in 3/5 of my naps.