I am so excited to read all these posts and find people I can talk with about Narcolepsy. The only thing I knew about the diagnosis, was from the movie - Shallow Hal. I didn't realize there was more to it than cataplexy.
Today, I saw an excellent Pulmonary DR who confirmed I have Narcolepsy. I have another sleep study scheduled, but he told me regardless of the results, he will begin treatment for me. I have a medical file about 3 feet high of blood tests, MRIs, CT-Scans, notes from: Psychologists, Psychiatrists, Rheumatology etc. Everyone dismissed my fatigue to depression, my fear of going to parties ( because I never knew when I would fall asleep) as social anxiety. With sleep paralysis (now I know the term) I was told I exercised too much and it was from lactic acid. LOL . I really thought I was a hypochondriac, since the meds did not work.
It appears meds will help with my sleepiness, but not with the awful dreams. I currently take Trazadone 50mg, which helps me to NOT fall into REM, so no Boogie Man. I was told that I should stop the Trazadone. I am in tears knowing the nightmares will come back and not knowing if something was real or just a dream. As you know, once I wake up and able to move my body, I feel as if I had a stroke. I don't want that to happen 2-3 per week ( or night) like before. It scares the crap out of me.
Is there anything you have found to help fight off the Boogie Man?