I love this forum, I have found out more useful information here than anywhere else. I love my man. He has narcolepsy, he was diagnosed about 12 years ago. I have known him for 3 1/2 years and have come to understand his narcolepsy, it seems to be so different for everyone. He struggled to tell me about it, he couldn't really explain it to me. We still struggle, I still don't understand it fully and I am not sure I ever will. I do accept it as a part of our lives and we try to deal with the issues it causes as they arise. This is becoming easier as I understand and recognise the symptoms in him. We could be out shopping and he will suddenly say he needs to sit down or get back to the car and put his head down, he will often during the day just wander off and I will find him lying down for 10 - 15 minutes, he is then semi refreshed.
I suppose from reading the posts on here I ask for the same thing that narcolepsy sufferers are asking for, patience and understanding. As a partner I don't always know what is happening, I may not be aware that the disease has taken over again and that you are not able to tell me what is happening. Be patient with us, I can only speak for myself and sometimes I feel that I may have done something to upset you or annoy you, sometimes if I have said something this can trigger an episode (may be a bad choice of word, please don't jump on me). I know that stressful situations have the same effect, you close down because you don't have the energy to deal with the situation at the time. This is difficult for me too, trying to guess if it is me or the narcolepsy.
I have read on here about reduced sex drive, not an issue for my man. Not sure if it is the Dex or just him but 24 hours a day would suit him just fine, lucky I feel the same way so this does not cause any issues for us.
Anyway not really sure why I am writing this other than to say I have found a man that I love deeply and his narcolepsy makes life interesting but once I understood it a bit it really I don't see it as an issue. I hope you all find someone to share and enjoy your lives with, if you already have someone try to be as patient and understanding with them as they are with you.