I have scheduled my mslt in about 2 weeks and I have some thoughts and or questions.
I had a sleep study about 2 years ago and back then my doctor said that I have excess rem sleep, specifically around 33%. At the time, I remember my doctor mentioning Narcolepsy as a possibility and I was supposed to have a follow up but I forgot and so did the office (I had asked them to call me to follow up in 6 months). Anyways, fast forward to several months ago and I'm still having problems with daytime sleepiness and my doctor ordered another sleep study because I am having trouble waking up in the morning and before doing that he had upped the pressure on my cpap and things weren't working, so he wanted to figure out what was the correct pressure. Again the test results came back saying that I had more than normal amounts of rem sleep. He said to wait another month to see if my daytime sleepiness went away. The only difference this time is he is mentioning that he thinks I have Idiopathic Hypersomnia. Based on my symptoms, I think it may be narcolepsy without cataplexy.
I went on a gluten free diet because I noticed an association between eating gluten and feeling tired. I will pass out anywhere from 20 minutes to an hour depending on how much I've eaten and how long it takes to wear off. I have been on that diet for about 2 years now. I can usually tell if I've had gluten as I will suddenly get hit with a sudden urge to take a nap, which I then start a sleep wake up cycle.
I have a vitamin D deficiency that doesn't want to go away.
I have fallen asleep after laying down in bed but before I can get my cpap mask on or turning the light off. Usually waking up at some point to turn the light off, confused as to what happened.
I have woken up confused about what time it is, day it is, what I was doing before I went to sleep.
When taking a nap at work, I have had dreams (during a 15 minute break). These are naps that I choose to take.
I have fallen asleep holding keyboard buttons down while at work.
I fall asleep while reading almost on a daily basis.
I don't sleep a lot at night some nights. If I get around 5 hours, I can function and don't get the headache or crankiness that I usually get with 8 hours of sleep. I often will fall asleep on the couch in the living room watching tv around 11 p.m., wake up around 1 a.m. go up to bed and get up around 6 a.m. to go to work. I then spend hours fighting off sleepiness.
I'm starting to wonder if my doctor is trying to spare me the requirement to report narcolepsy to the dept of motor vehicles. I don't know if that's what he's thinking or if he really thinks that I have IH.