I went to my GP after reading an article written by someone with hypersomnia and finally realizing that my sleeping habits weren't something that was normal. He's super thorough and immediately sent me to get blood work done, and a thyroid sonogram as well as giving me a referral to a sleep specializing pulmonologist. I go today to discuss the blood work and sonogram with him, however the pulmonologist already went through them with me and said all of my blood work is normal for a perfectly healthy 25 year old woman (I do have nodules on my thyroid but thyroid levels are normal and no antibodies)... and through talking with me and taking my history she believes I have narcolepsy. I'm waiting for the call to schedule my sleep study and MSLT.
In the meantime, I'm trying to learn as much as I can. That's why I'm here. I'm scared because I've been sooo absolutely exhausted lately. I've never consumed so much caffeine in my life. It's not even helping. It makes my body feel jumpy but does nothing for the feeling that I have to sleep right now- absolutely have to. Is there anything you would suggest I do in the meantime to help me be less sleepy? I obviously can't take medication for it since I don't have a diagnosis but is there anything over the counter you would suggest or even how I might structure my schedule to alleviate this a little bit?
By the way, symptoms: Severe EDS, falling asleep extremely quickly, dreaming before I'm asleep, difficulty waking, automatic behavior, seeming to wake up and shut off alarm and not remembering it, wild and vivid dreams, waking up with the same level of sleepiness that I went to bed with, what the doctor believes to be cataplexy (going weak in the knees and feeling weak all over when severely upset)