9 posts in this topic

Hello everyone, i am Carrie-Ann 

 

 

I just wanted to make a new Forum post saying that there is an ENORMOUS amount of Support for people who suffer from Sleep Disorders, and even in particular - Narcolepsy. Whether in Canada or not, and i have compiled a very large list of links, resources, helpful information and useful websites, or links to organizations that support Narcolepsy and other Sleep Disorders like Idiopathic Hypersomnolence/Idiopathic Hypersomnia, Insomnia, Sleep Apnea, ect... 

 

I have started and continue to run many online, international, local and worldwide (even offline) support groups! Not all are located on facebook but many of them are as it is a universal networking tool, and it is very easily maneuvered. 

 

Incase you are wondering if there is local support anywhere you are local to in Canada or abroad, there is! Please let me know and i can track down anything you would like me to send to you as for links of resources ect, i love to help others!

 

Here is just a small list of Canadian Narcolepsy / Sleep Disorder support groups i have compiled to help give you / show you support and that we are not alone... We are never alone... 

 

§  Canada:

1.     Canadian’s With Narcolepsy: https://www.facebook.com/groups/canadian.narcolepsy.network/

2.     People With Narcolepsy in Niagara and Surrounding Area:https://www.facebook.com/groups/PWN.In.Niagara.And.Area/

3.     Narcolepsy Awareness In South Western Ontario:https://www.facebook.com/groups/284556971578939/

4.     Sleep Wake Disorders Association Of Toronto: https://www.facebook.com/groups/93388941079/

5.     Narcolepsy In Southwestern Ontario: https://www.facebook.com/groups/325073480929420/

 

 

 

Also some lovely groups i have had the honour of partaking or being member to include;

 

*Groups I Find Priority (Most Helpful)*: 

 

 

French Based Narcolepsy & Hypersomnia Group:

  1. French Narcolepsy / Hypersomnia group:https://www.facebook.com/groups/Narcolepsie.maladie.rare/
  2. Narcolepsy and Cataplexy (FRENCH): https://www.facebook.com/groups/414079558622037/?ref=br_rs

 

For Children or Parents Of Children Who Suffer From Narcolepsy Groups:

  1. Narcolepsy Kids And Parents Support Group:https://www.facebook.com/groups/NarcolepsyKidsandParents/
  2. Narcolepsy Support For Parents With Children With Narcolepsy:https://www.facebook.com/groups/441689819204688/
  3. Children With Narcolepsy: https://www.facebook.com/groups/161993243839808/
  4. Children With Narcolepsy And Cataplexy: https://www.facebook.com/groups/141243762670009/
  5. Children With Narcolepsy And Cataplexy: https://www.facebook.com/groups/141962319265658/
  6. Children With Narcolepsy And Cataplexy: https://www.facebook.com/groups/127895897312441/
  7. Parents Of Children With Narcolepsy 16 Years Or Younger:https://www.facebook.com/groups/201957826594849/?ref=br_rs

 

 

For Young People With Narcolepsy:

  1. Narcolepsy Youth: https://www.facebook.com/groups/497366243659141/
  2. Young Adults With Narcolepsy: https://www.facebook.com/groups/YAWNs/
  3. (NAPS) Narcolepsy Awareness & Peer Support: https://www.facebook.com/groups/NAPS.group/
  4. Young People With Narcolepsy: https://www.facebook.com/groups/YoungPeopleWithN/

 

 

For Students With Narcolepsy:

 

Students With Narcolepsy: https://www.facebook.com/groups/565929143438477/

 

 

Family Narcolepsy Related:

 

Families With Narcolepsy: https://www.facebook.com/groups/363274095667/

 

Married To A Narcoleptic: https://www.facebook.com/groups/480663662022594/

 

Narcolepsy Network Family Members Support: https://www.facebook.com/groups/181106248734564/?ref=br_rs

 

Spouses With Narcolepsy: https://www.facebook.com/groups/257183447665061/?ref=br_rs

 

NAPS (Narcolepsy Awareness and Parenting Support): https://www.facebook.com/groups/505980516116220/?ref=br_rs

 

 

For Women/Females With Narcolepsy:

 

Sleeping Beauty (Women With Narcolepsy):https://www.facebook.com/groups/390034154391843/

 

 

Moms With Narcolepsy:

 

Support Moms With Narcolepsy: https://www.facebook.com/groups/228539353828226/

 

 

Narcolepsy & Cataplexy Related Groups:

 

Narcolepsy / Cataplexy Education Focused Group: https://www.facebook.com/groups/162971610542154/

 

People With Narcolepsy / Cataplexy: https://www.facebook.com/groups/160978637260153/

 

Cataplexy With Narcolepsy: https://www.facebook.com/groups/565772413451987/?ref=br_rs

 

Support Narcolepsy and Cataplexy Petition: https://www.facebook.com/groups/29565092017/?ref=br_rs

 

Narcolepsy & Cataplexy: https://www.facebook.com/groups/8069856253/?ref=br_rs

 

Narcolepsy And Cataplexy Appreciation: https://www.facebook.com/groups/54740918864/?ref=br_rs

 

 

 

Themed Narcolepsy Groups:

 

Art:

 

N[Art] (Narcolepsy Art): https://www.facebook.com/groups/narcolepsyart/ 

 

Art’s [N] Crafty Minded: https://www.facebook.com/groups/533814856648017/?fref=ts

 

 

Self-Employment:

 

PWN Etsy Sellers: (People With Narcolepsy Who Have Etsy Shops): https://www.facebook.com/groups/PWNetsysellers/

 

 

Hallucinations & Dreams:

In Your Wildest Dreams: https://www.facebook.com/groups/334069026625849/

 

 

Sexual Preference Narcoleptics:

 

LGBT Narckies: (Lesbian Gay Bisexual Trans) https://www.facebook.com/groups/236856289703751/

(For this group because it is set as *Secret, I will have to (Carrie-Ann Burns), add you to it myself, but we have to be friends on Facebook in order to do this)

 

 

Other / Misc. :

 

Narcolepsy Gamers: https://www.facebook.com/groups/Narcolepsy.Gamers.Group/

 

People With Narcolepsy Pen Pals: https://www.facebook.com/groups/NarcolepsyPenPals/

 

The Travel Narcolepsy Clan: https://www.facebook.com/groups/214927018611723/

 

Narcoleptic Bloggers: https://www.facebook.com/groups/596510600380628/

 

Pwn Memory or Lack Their Of: https://www.facebook.com/groups/370812656268276/

 

 

Healthy Living & Eating Narcolepsy Groups:

 

Rockin` Bods For People With Narcolepsy: https://www.facebook.com/groups/230270840384216/

 

Herbal Healing: https://www.facebook.com/groups/2426239459/

 

 

Gluten Free groups:  (Please be aware not all are for people with N, but t s helpful if you are trying to remove Gluten from your diet)

 

 

Other Health Conditions / Autoimmune:

 

Fibromyalgia:

I Will Not Let My Fibromyalgia Run My Life: https://www.facebook.com/groups/2781390088/

 

 

Religion Based Narcolepsy Groups:

 

Christian Narcolepsy Support: https://www.facebook.com/groups/christiannarcolepsysupport/

 

 

Sleep Paralysis:

 

Sleep Paralysis: https://www.facebook.com/groups/222664287779945/

 

 

Hypersomnia Groups:

 

Idiopathic Hypersomnia: https://www.facebook.com/groups/2562436385/

 

Support For Hypersomniacs: https://www.facebook.com/groups/18372493925/

 

 

Groups For Sleep Disorders:

 

Sleep Disorders Support and Advice: https://www.facebook.com/groups/210384709116327/

 

Sleep Recovery: https://www.facebook.com/groups/124808190907370/

 

Sleep Disorders: https://www.facebook.com/groups/2211128812/

 

 

Auto Immune Groups:

 

Auto Immune Disorders: https://www.facebook.com/groups/199366900179502/

 

Autoimmune Awareness Alliance: https://www.facebook.com/groups/2506546182/

 

Auto Immune Problem's That People Don't Understand: https://www.facebook.com/groups/autoimmuneproblems/

 

 

 

Good Narcolepsy Related Information Websites:

 

http://everythingnarcolepsy.blogspot.ca/

http://stridesagainstnarcolepsy.com/

http://julieflygare.com/

http://wakeupnarcolepsy.com/

http://www.unitenarcolepsy.org/

 

 

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Holy crap.  I grew up in Omemee.  Must be something in the water :P

 

Thanks for the info!!

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Hehehehe  i was born in Oshawa, grew up in Oshawa and Lindsay since i was a kid, just moved back from Scarborough to Lindsay again... 

 

 

If you are in Omemee we should set something up! I have been wanting to set up local meetings for us pwn (people with narcolepsy), but i didn't think there were any in the area.

 

 

 

 

Holy crap.  I grew up in Omemee.  Must be something in the water :P

 

Thanks for the info!!

 

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Thank you and no problem, if you want more let me know i have tons! Hope to see you join!

 

 

It's a wonderful post of excellent links. Nice job!

 

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I would but I got the hell out of there the day I turned 18 and moved to the GTA :P

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Oh hehehe i just moved back from Scarborough! :P

 

 

I would but I got the hell out of there the day I turned 18 and moved to the GTA :P

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Hi Carrie-Ann,

 

Well done ! i follow julie Flygare also. I would love to meet others with narcolepsy and talk.

Can you find any people or group in Vancouver area for me?

 

I was diagnosed in 1985 and we started a national network of self help groups in every province. It was great for 10 years. So nice not to be alone.

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Yes there are several out your way and one of my favorite people actually live in BC with N!

 

If you join the Canadian group here and introduce yourself you will see we have a list of where abouts in the private group so that others can make friends with other pwn around them :)https://www.facebook.com/groups/canadian.narcolepsy.network/

 

 

Hi Carrie-Ann,

 

Well done ! i follow julie Flygare also. I would love to meet others with narcolepsy and talk.

Can you find any people or group in Vancouver area for me?

 

I was diagnosed in 1985 and we started a national network of self help groups in every province. It was great for 10 years. So nice not to be alone.

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