It's okay.... its crazy how it all panned out. Just a series of pieces that didn't fit together but I KNEW something was wrong.
My first Dr, the one who did the Psg dismissed me based on my results. he actually said the same thing about the first episode- that it couldn't have been cataplexy without an actual trigger.
I struggled with that for weeks (the no trigger thing) So did my family. They pushed depression and "all in my head". Saw another neuro, sais it was "pseudo seizures". I knew better... these few weeks were such a low point for me, my body telling me something but what? I would collapse all the time, for no reason. Walking into a room, brushing my teeth, getting the mail. It was awful. I had to keep looking for answers.
I went to my regular dr, had an episode in his office (he went white as a ghost, never seen anything like that!) and he recommended this particular sleep dr in the area.
I went to him and and showed him some videos of my episodes and he diagnosed me on the spot.
I was originally on Adderall and wellbutrin and now am on Zoloft, Adderall (as needed) and Xyrem. It's a work in progress but at least the episodes have slowed down.
I have been sleepy for years and years but the leg weakness and twitches started about march of last year. I never figured out why even after EMG, MRI, EEG, etc. as it turns out around that time I caught "fifth disease" from my son. Its a simple kids virus but can be tough on adults. My dr says that is what triggered an immune response in me and unlocked the narcolepsy.
So today I am doing Ok... family still questions diagnosis and that weighs on me. But I am proud of myself that I stuck to it when I knew something was wrong.
Thanks for all your support guys, it was so helpful to come here when I was so lost.