I could use some advice, if you have a few minutes! I'm currently an MS2 - just diagnosed in August. I've been taking Modafinil (Provigil), and its helped tremendously. When taking my medication, my symptoms of EDS are completely controlled. To my disappointment, I had to share my diagnosis with the director of my medical school. (My entire class was randomly drug tested.) At the end of this spring, I'll be moving from a smaller, regional campus to the main center for my 3rd & 4th year rotations. My director instructed me to reach out to the school's Assistant Dean of Academic Advising. The Assistant Dean, who serves on the Committee for Disabilities & Accommodations, advised me to obtain a letter from my neurologist before starting rotations. She vaguely said he should include examples of how my disease may affect me during rotations - mostly for my protection. (I.e. What if a clerkship director gives me a bad evaluation b/c he thinks I'm bored and disinterested instead of fighting to stay awake.)
I understand the purpose of this letter, and I'm not opposed to it. However, I'm having a really hard time getting my physician to write it for me. At my appointment, he basically dismissed my request. In his words, "While your symptoms are so well controlled, you shouldn't have any issues." Then, he told me to follow up with his nurse (I get it. He's busy.) After playing phone-tag and messaging through my online portal, I've finally gotten him to agree to write it. Except, he wants to know "specifically what I want him to say".
The truth is, before I was diagnosed or medicated, I could have given you a dozen examples of how my narcolepsy affected me. Now, however, none of them are (thankfully) happening anymore. Additionally, I don't know EXACTLY what 3rd & 4th year rotations will be like. Therefore, I'm struggling on what to tell my physician. I was hoping he would have a generic letter that he could tailor to my case, but instead, I think he wants me to basically write the letter for him.
For those of you that have already completed medical school, rotations, training, etc. -- can you give me help me brain-storm scenarios to cover in this letter?