I was just diagnosed last week. I've been weaning down off a medication that gave me some dangerous side effects. As it turns out, it was somewhat suppressing my cataplexy (before I knew I had Cataplexy). Ive been slowly weaning off it since April and it was since then I put two and two together and got my N diagnosis. I've to get down to zero for my sleep study. I tried three nights at 10mg and have been cripled ever since. I had such extreme attacks my body was jerking like a full seizure. I couldn't walk for 24 hours. The doctor told me this is severe rebound cataplexy and the N horse is bolting from where it is hidden. It looks like i really do have severe C. My husband made me laugh at lunch and my head went into my lunch. Awful stuff. Anyone else ever had this? Does it settle down after a couple of weeks? I'm hopeful that since my other meds inadvertently suppressed it somewhat, then when I start my proper meds I should be hopeful that it can be controlled. I just cant imagine living like this forever.
Perhaps the stress of being diagnosed caused this also? Do times of severe stress (life changing stress) like this cause a temporary worsening of symptoms?
Thanks in advance.