I've been dealing with exhaustion for 15 years. In the past year, I was diagnosed with sleep apnea, restless leg syndrome, and insomnia. After the CPAP machine didnt work, I was sent to a psychiatrist who believed I had N. After a couple of months struggling with him about how Nuvigil wasnt working all that great, he made another appt for a sleep study with a "sleep specialist". Finally, a couple of weeks ago, I have officially been diagnosed with N. Even though, both doctors are aware that Nuvigil isn't working, neither are prescribing Adderall or any stimulant for that matter. They both just want to attempt to focus on how to get me to sleep better. This is a constant blow after depressive blow, affecting my marriage, job, and fatherhood. Why? Why is it so hard to get treatment? Anyone? I'm at my witts end and completely depressed and have lost all hope!
Thanks to all.
Nuvigil wasn't out when I was originally dx'd, but I was originally put on Provigil.
This was a stupid move on the doctor's part, because I am also on hormone therapy for an unrelated hormone imbalance. Provigil interacts negatively with this medication, but my doctor told me 'it's the preferred method of treatment.' Except for my case, where it was a STUPID choice. Not only did Provigil not help me, but it set my hormone therapy off for MONTHS.
Why did the doctor change my prescription from provigil to adderal? Was it the fact that it interfered with my other prescription? Nope, she couldn't care less. Was it the fact that I told it made me feel fuzzy, slow, and zombie-like all day? NOPE! The reason she changed my prescription was that I told her I took Provigil at my first alarm around 8 am and slept till noon. Completely true, by the way. All the other stuff didn't matter, neither did the fact that I had disorientation from Provigil after being on it for a month, the only reason she was willing to switch my prescription was that I could SLEEP while on provigil.
If that sounds ridiculous, that's because it is. I am now on adderal and completely functional. Had I known that provigil caused issues with my hormone thereapy, I would have refused it as a treatment option (given how much trouble it put me through.)
Have you specifically asked to be switched off nuvigil to adderal or ritalin? Sleeping well through the night might help your daytime symptoms, but that's not the case for everyone. For instance, I usually sleep well at night. A+ in sleeping at night. But I still had EDS/sleep attacks. Narcolepsy sucks that way. That means treating me by 'making me sleep well at night' would be a waste of time... I needed stimulants.
Sometimes asking about it is all that needs to be done.