Hi everyone. I had my PSG and MSLT in September of 2011. I was instructed to stop taking all medicines for two weeks before the study. I was worried about my Cymbalta-I called my psychiatrist who advised three days off of the Cymbalta was the most she would let me do. The evening of my study I didn't feel great, but not terrible either. The PSG was fine. The next morning I felt a little closer to terrible. When they woke me up after my second nap, I went into full anxiety attack mode. The technician contacted my sleep specialist and she came back to me and said we could end the MSLT and that she thinks "we got enough valid data" for an accurate reading.
When I met with my doctor to discuss the results (which he gave me a copy of-not the raw data, but his interpretation), he told me that I had reached REM sleep during the two naps before we stopped the test. He told me that for all intents and purposes, I have narcolepsy. But the report says "Diagnosis: Hypersomnia (ICD-9 307.44) Although this study was not adequate given lack of adequate nap trials, sleep onset REM periods were noted in the first 2 naps raising the concern for narcolepsy. Clinical correlation required." He continued to treat me as a pwn, including writing a letter excusing me from jury duty because of my narcolepsy.
I have since switched to a new sleep specialist who said at my first appointment "Maybe you have narcolepsy, maybe you don't" but is treating me for narcolepsy. What I'm worried about is that I have just started applying for disability-which I know can be hard enough WITH a diagnosis. I've seen several people here say that they were sent home after their second REM sleep nap. I am wondering why some doctors would call a study with only two naps "inadequate" and some doctors will send you home after the second nap. I am just really worrying about my chances to get disability.
If anyone has any insights or advice, I would greatly appreciate the feedback. Thanks!!