Livi

DC support group?

10 posts in this topic

I know the DC group is active. Please remember that it is a patient run support group, so the person who would respond to you is juggling many o f the same symptoms as you. They do meet regularly so I would suggest just showing up at their next scheduled meeting. They often post on here and other sites when they have an upcoming meeting, often at the MLK Library in SE. Send me a personal message if you need help finding their next meeting date and I will try to find it for you.

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Here is their facebook link. I do not see that they have any upcoming meeting posted. I suggest trying facebook to see if you can gain any information.

It is definitely hard when a group is run by volunteers- people's lives get overlaoded sometimes. And we have a rare disease, so there are few options for us.

I hope you get some info and support.

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Maybe you could consider starting something informal and posting a date/time. It can be hard to find a perfect fit since there are not many of us. Since you are in a metro area you may get some replies. If you build it they will come- so to speak.

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Hi Livi,

 

I'm so sorry that you emailed me multiple times and didn't get a response.  

 

I see that you were looking for the support group during the spring and summer of 2013 - I had a complicated recovery from a major health issue, and wasn't even able to do much email during those months.  The group was therefor on a long hiatus during much of 2013.  I'm so sorry about that.

 

If you are still interested in the support group, we are back to meeting periodically.  We don't have a set schedule at the current time, and simply announce each meeting as it is scheduled.  We meet somewhere between monthly and quarterly.  If you'd like to reliably receive announcements of the meetings, please email us at LivingFullyDC@gmail.com, and we'll be glad to add you to our email list.

 

Best,

Saraiah

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