Hey everyone long time no chat!
So heres the problem... The past 3 shipments of Xyrem haven't worked very well. The taste is different as well. It takes me so long to fall asleep with the first dose and my July shipment I have problems falling back to sleep with the second dose!
Last night I couldn't fall asleep and when I don't fall asleep right away I start thinking too much and then wind up balling my eyes out its awful!
I guess my questions are... has anyone else had a shipment or two that didn't work? Or, has anyone built a tolerance to Xyrem.
I feel like its the meds (maybe from the heat) not a tolerance issue due to the fact that Junes shipment was not as bad as May's and now Julys. I was able to use a bottle of June's for the first dose and then used May's for the second and did okay. I still have one bottle of June left but wanted to see if July was any better. So last night both doses came from the new shipment and it was the worst night I have has since the very beginning (when the doses were much too low)
My EDS is starting to come back and not being able to fall asleep is really bothering me.
Ive talked to a Xyrem Nurse, a Xyrem Pharmacist, as well as the person from Jazz none of them helped or gave me a reason or said I could send the crap back!!! I have an appointment with my sleep doc on Monday, so hopefully he will have something useful for me.