So I found out around the end of April/early May that apparently I'm narcoleptic... which made lots of things I've been experiencing for the last decade+ make lots of sense! My sleep dr put me on xyrem and we, so far, have me up to 3.75 twice nightly. He also gave me Nuvigil 150mg tablets. For one week I took a half (75mg) and it did absolutely nothing. For most of the following week I took the whole pill and went completely (swear word) crazy, plus it worsened a breathing issue I had already been having (stress related). As of my last appt on Friday he told me to try 3/4 of a nuvigil pill because he's hesitant to put me on traditional stimulants (I have MVP with gurg, a history of stress related health issues, and a history with anxiety - even though most of my drs don't listen to me). For the last three days I've been taking it as one dose in the morning. I must admit - I'm completely miserable and feeling quite crazy. The trouble breathing has been back since yesterday (today being day 3). I'm slightly manic, completely fogged, hallucinating more often while awake, one half of me is totally wired but unable to concentrate, and the other half of me wants to fall down wherever I may be and sleep. My memory is shot and I can barely think straight. As of tomorrow I plan to spread the dose out - 1/2 in the morning and the other 1/4 later on - and I'll give that a few days to see what happens.
On another note, I had a follow-up with a different doctor today and (insert glorious music) someone FINALLY listened to me! I explained what's been going on with my sleep dr, the narcolepsy, the new meds, plus all of my health issues from the present and going back through my history. He gave me a prescription for Xanax 0.25mg tablets and said I can take up to 4 whole pills per day (I can also cut them in half if I feel they're too strong), but to use them on an as needed basis. This was on the provision that my sleep dr says it's ok to use this with the meds he's already got me on.
I was just wondering if anyone has had any similar experiences, has been on these meds together, or can lend any advice. I would have cried on my drive home had it not been for my personal mantra of "There's no crying while driving." I feel like my life has been spiraling down and then we threw narcolepsy on top of everything, and then things kept getting worse and I'm just falling apart. I'm feeling very lost, lonely, and confused. All I want to do is feel calm, well rested, and take a deep breath. I don't think that's too much to ask in life! :-)