Clouddog

Does This Sound Like Narcolepsy ?

10 posts in this topic

I have no idea why I have not picked up on this

I have for 3-4 yrs fallen asleep within seconds lying down

I go straight into REM even after a few seconds of a nap

I've had weekly necessity to sleep in the daytime a lot of my adulthood

I have once had a serious car crash after a severe hallucination

I've had a lot of wake dream wake dreams of getting up and going down the hall repeatedly very real seeming

I've had a lot of those dreams of being pulled around the room, or through the floor and spinning upside down in the air

I've had falling asleep hallucinations

I've sleepwalked a lot, and eaten, changed clothes, looked at text messages , gone pee a lot

In sleep

I talk crap lately as I'm falling asleep frequently

Also talking rubbish when awake and also got words wrong frequently

I sometimes wait all day before feeling really awake yet feel very awake when I wake in the night every night, frequently get up, used to smoke now just a cup of tea

I think that's most of it

Does that sound like Narcolepsy ?

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Sure sounds like it. Time for further investigation. Lots of good luck being sent your way.

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Sure sounds like it. Time for further investigation. Lots of good luck being sent your way.

Thanks ferret

I should say that I have had huge lots of time having naps every day, I always thought it was sedation from schizophrenia meds

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Have you been diagnosed with schizophrenia? Or are you on schizophrenia Meds for another condition? Just wondering if it was it a definite diagnosis, because someone posted on here recently about their narcolepsy being initially misdiagnosed as schizophrenia:

http://narcolepsynetwork.org/forums/index.php?/topic/5387-wrong-diagnosis-of-schizophrenia/

 

I think a lot of people (and their doctors') often blame medications for their sleepiness, when it is not the real problem, or only partly contributing to the problem. About 6 years ago (before my sleepiness became really debilitating), I went off my antihistamines to prove to myself that they weren't contributing to my tiredness- I didn't last too long, since my hay fever was really bad without them, and if anything I was more sleepy, and definitely having a harder time concentrating during the day and sleeping through the night. Then I decided to blame the hay fever itself (amongst other things) for the tiredness.

 

My hay fever was problematic in it's own right, and was not being controlled with medication, so over the last 18 months, I had immunotherapy (allergy shots) to treat my allergy to dust mites. My hay fever has been a lot more controlled since then, but that didn't improve my sleepiness. It did allow me to go on a longer trial without any antihistamines (I use a lot less now, than I used to, anyway) at the end of last year, to prove to a sleep specialist that is wasn't contributing to my sleepiness problem (to be fair, he did say, he didn't think it was the main cause of my sleepiness, but that it wouldn't be helping...)

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Wow I hope the other person didn't go off meds if they were wrong about misdiagnosis

Schiz is the most serious of all mental illnesses

I've been institutionalised for a yr and half on acute psych wards and double that psychotic floridly

I am also autistic which is also not a misdiagnosis either

Sorry to sound shirty but if you go around suggesting that its a bit like saying try going off your meds which could get someone killed

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I know that was pretty harsh

Sorry

Your allergies sound like a nightmare

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I hope I haven't annoyed anyone

I just read the other thread

Strange to read about it from the pov of a misdiagnosis

I wasn't diagnosed autistic until age 37

That had me worried about all kinds of problems

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Wow I hope the other person didn't go off meds if they were wrong about misdiagnosis

Schiz is the most serious of all mental illnesses

I've been institutionalised for a yr and half on acute psych wards and double that psychotic floridly

I am also autistic which is also not a misdiagnosis either

Sorry to sound shirty but if you go around suggesting that its a bit like saying try going off your meds which could get someone killed

 

I certainly wasn't suggesting that you or anyone else should go off medication on your own. I agree that schizophrenia is a serious medical condition/mental illness. I was just making you aware that misdiagnoses do happen, but it seems like in your case, your schizophrenia diagnosis was pretty clear. I'm sorry if I made you feel like I was minimizing the legitimacy of your schizophrenia. That was not my intention. Of course it is possible to have more than one diagnosis as well, sometimes with symptoms over-lapping. It would be worth getting evaluated by a sleep specialist, to see if narcolepsy and/or another sleep disorder is contributing to the symptoms you mentioned in your first post. Good Luck. I hope you are able to find some answers and relief soon.

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