I haven't been on the boards in a long time, but I am in a bit of a mess and needing some support. *sigh*
I have no insurance and for the last 18 months or so, I have been seeing doctors at a free clinic. The first doc I saw (regularly) just continued the same meds that my previous doc had me on with one exception: I switched from Dexedrine to Concerta because I could get the Concerta at a reduced cost through the Johnson & Johnson prescription assistance program. I did this for a little over a year and the Concerta just didn't help a whole lot so I planned to ask my doc to switch me back at my next appointment, but she left the practice and I saw a new doctor at my last appointment.
The new doctor looked over my med list and said I was on a very dangerous combination of drugs and he wouldn't be prescribing me anything for the narcolepsy at all and I would need to see a specialist. He also implied that I was drug seeking and made me explain all of my symptoms/justify all my meds... I suspect this has something to do with having periodically been prescribed narcotics for random injuries and pain conditions. Most recently last October... I think I got through to him and maybe convinced him I wasn't drug seeking when I completely broke down crying and said I would gladly see any specialist he wanted if I had the money to do it and I just wanted to be semi-functional again.
So, at this point, I have no concerta, no dexedrine, no nothing while I wait for them to find a sleep specialist that will see me for next to nothing. It's been about two weeks and I can only describe the difference between being tired while medicated versus tired with nothing, is panic! I feel like I'm going to have an anxiety attack or start crying if I don't go back to sleep. I have a feeling that the doc would tell me I'm panicking because I'm addicted to controlled substances or something, but I remember this panic from before being medicated.
Can anyone else relate to the panic sensation of being "narcoleptic tired?" Any other ways you might describe it? Any advice for how to deal with this doc? I have several medical conditions that have kept me from working so I'm sort of at the mercy of this clinic, although, not necessarily this doc.
Thanks in advance!