I, just a few days ago, visited my Sleep Doctor and he asked me a couple questions, smiled and said "I'm 85% sure you have Narcolepsy." I was ecstatic, which might sound awful, but after the months I've been enduring--all of this fatigue, ANY definitive answer gave me chills. I had been to several diagnostic clinics with teams of confused doctors trying to diagnose me with depression.
No matter what I told them, they would not believe that I was down BECAUSE I was tired. I felt so helpless sitting in those rooms, not being heard. When my sleep doc told me that I had just given him the best description of cataplexy he had heard in fifteen years I felt that perhaps this would be the solution I had been waiting on.
It only felt better when he told me that my Generalized Anxiety Disorder was something that comes with Narcolepsy in many people.
The anxiety has closed me in for weeks before, but the medication I tried for anxiety (zoloft) just about killed me. It threw me into a deep depression and I got off of it as soon as I realized what it did. Right after I got off of it I began to feel the symptoms of Narcolepsy. Though my doc said medications don't usually turn on the N switch, when reading many posts said that Depression or trauma could set it off.
I was wondering if any one else experienced this during their first diagnosis?
Also, how do you communicate with people the way the tiredness affects mood. It seems that people either hear "Anxiety" or "sleep disorder" not realizing that they so often go together (or Depression).
I am hesitant to try drugs for N considering my horrible reaction to zoloft. In fact I've been doing my best to stay away from inorganics at all. From my medication to my food.