Mslt Was Negative But Sleep Doc Wants To See Me Asap?
Posted 04 June 2013 - 03:10 PM
I feel very confused, realize this means I didn't hit REM in any of my naps, but I thought I was dreaming.
The Nuvigil samples he gave me help a lot, so they called in an Rx for me, but I don't think insurance will cover it?
Even with insurance, my sleep study cost me $2000 so I can't get another one any time soon. So now what?
So frustrated and confused! :-(
Posted 04 June 2013 - 07:28 PM
Either way, your doctor is recognizing that you are excessively sleepy. Your MSLT certainly must have revealed that with a short sleep latency.
So, while the jury may still be out on your diagnosis, at least you have the appropriate medication to get you some relief.
I hope you get your answers.
Posted 04 June 2013 - 08:50 PM
Posted 05 June 2013 - 08:17 AM
Hi, I had the sleep test 2 years ago, with REM during the day in all naps under 1 min. I was also falling asleep while waiting for the naps, I even hid in the bathroom so I could sleep!
Provigil is a good med, but yes, expensive. They have some coupons on their website, and if they don't you can ask about Nuvigil.
I don't have severe cataplexy only with certain emotions and it effects my legs. From what I remember 30% of people don't have cataplexy but do have narcolepsy.
With that being said do you have sleep paralysis, hallucinations, insomnia etc?
Not sure how old you are but my sleep doc suspects I should've been diagnosed as a freshman in highschool but no one ever took me to the sleep doc, I was diagnosed with depression at age 18, and throughout 10+ years... until everything got WORSE and I saw a sleep doc.
It's possible that you may not have reached that place where it gets ridiculously bad (I could sleep for 3 days straight) where it comes up.
Or of course it is possible that you have another sleep disorder or autoimmune like chronic fatigue syndrome.
See the doc, or ask the nurses to have the doctor call you back! My sleep doc calls me back all the time.. I don't have to go in frequently, follow up is once a year unless I have changes. She calls me back, we discuss and she gives me her opinion. Then we decide if I need to come in or not.
Just know that in the beginning you may be coming in a lot. I had 3 or 4 appointments in the first 3 months. Provigil and Nuvigil were working but I couldn't sleep, so I was switched to adderall.