For those who are looking for more support for their children, and better understanding and knowledge should check out some of these groups, whichever apply to you and your children / child;
*Groups I Find Priority (Most Helpful)*:
Family Narcolepsy Related:
Family Members Of People With Narcolepsy: https://www.facebook...lymembersofPWN/
Families With Narcolepsy: https://www.facebook...s/363274095667/
Married To A Narcoleptic: https://www.facebook...80663662022594/
Narcolepsy Network Family Members Support: https://www.facebook...4564/?ref=br_rs
Spouses With Narcolepsy: https://www.facebook...5061/?ref=br_rs
NAPS (Narcolepsy Awareness and Parenting Support):https://www.facebook...6220/?ref=br_rs
For Women/Females With Narcolepsy:
Sleeping Beauty (Women With Narcolepsy):https://www.facebook...90034154391843/
N[Art] (Narcolepsy Art): https://www.facebook.../narcolepsyart/
Narcolepsy Gamers: https://www.facebook...y.Gamers.Group/
People With Narcolepsy Pen Pals: https://www.facebook...colepsyPenPals/
I definitely HIGHLY suggest the People With Narcolepsy Pen Pals group for anyone who is looking to connect their children with other children close to their age they can send art they do or create back to eachother till they are old enough to write letters, or send postcards!! and the parents of the children can also write eachother... We have different ways we go about this, we ask if they would prefer to be pared (parent to parent whether both have Narcolepsy and their children do not, or one has Narcolepsy and the other does not, or both don't have Narcolepsy and their children do). That way they can learn from eachother ect, give advice and support, and the children the same thing mix it up whether both are affected by N, or only one is and the other's parent is they can share advice and just connect. It is a great way for more person-to-person personal support and you can make friends world wide!! I highly suggest that the parent stays involved in their childs connections through the group (although so far so good and everything is safe) but it is always smart to have control of communication with strangers.
If you would like to know more information about the group you can read about it on Julie Flygare's website!!
We have over 700 users, and many children and parents with N and without on there xo you are able to pick who / what type of person you would like to contact.