About a month ago, I decided to visit a sleep specialist after 26 years of falling asleep uncontrollably. After telling him my symptoms, he nodded and immediately said "Sounds like you have a condition called narcolepsy" and went on to explain why he felt that way. Though this was never something that I had seriously considered, I was suddenly convinced that I had it because he was so sure. He had me take an overnight sleep test followed by an MSLT to confirm.
A week ago, I went in for the results. He gave me no details of my sleep study, such as how many times I entered REM or what my sleep latency was, he simply said "Your tests were normal, but these tests aren't really that accurate. I think we should start treating it as narcolepsy, because that's what it sounds like to me." He put me on 150mg of nuvigil a day and it's been working great. I've had a couple of days where I still needed a nap or two, but overall, it's made a difference.
I've really been worried, though, about the lack of clarity that I have about what's going on with me. I know that I didn't meet the diagnostic criterea for narcolepsy as my tests were "normal." I don't want to be taking a drug for something that I might not even have. On the other hand, I don't want to go back to how I was feeling before where everything I did was a chore because all I could think about was sleep.
I'm going back for a follow-up in two months and I'm not sure what to say to him. I never like to question doctors because I feel like it infuriates them (I didn't go to medical school, afterall.)