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Results Of Sleep Study


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#1 Mmartens3

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Posted 07 May 2013 - 03:12 PM

The dr. said that I only went into REM during one nap (the tech had told me 2) so he can't technically dx me with narcolepsy. But based on my avg. sleep latency (2.9 min) and my symptoms, he is basically considering me to have narcolepsy. He wants me to try xyrem and eventually nuvigil or provigil.

#2 DeathRabbit

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Posted 07 May 2013 - 09:38 PM

Make sure your insurance will cover the X if* you aren't diagnosed. They tend to mince diagnostic criterion when it's 7200 bux a month of medicine.



#3 Mmartens3

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Posted 08 May 2013 - 12:13 PM

I have already gotten a phone call from THE pharmacy. They took my insurance information and said they would call me back in a few days to talk to me more about xyrem.

My husband is not sure about all of this. He is not convinced that I have N. He is wondering if I can just take a mild sleep aid to help me sleep. I made an appointment so that we can go see the sleep specialist together ao he can have his questions answered and his concerns made known.

#4 DeathRabbit

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Posted 09 May 2013 - 12:20 AM

Yeah, at this point, I would go ahead and perhaps start treatment for N, since any treatment for N will help any EDS sufferer, but you might wish to continue to explore other somatic reasons for your lethargy, since the MSLT was so weak.



#5 Mmartens3

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Posted 09 May 2013 - 12:59 AM

I do get a lot of pain at night which keeps me awake. I also get anxiety attacks sometimes that keep me awake. I may just be suffering from slep deprivation. I have been having a lot of SP and HH recently. Sometimes they are really disturbing and they seem to last for a long time. If xyrem will keep me from having those, I am willing to try it.

#6 Mmartens3

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Posted 09 May 2013 - 07:58 PM

On the phone right now with the SDS pharmacy. They want to do a checklist with me and get my first shipment of xyrem sent. They said the dr provided a voucher so my first month is free.