Hey (this is my first post, sorry if it's in the wrong section).
I've been diagnosed with Narcolepsy for about five years (i'm now 21)
and have been on Modafinil since the beginning, which didn't really do
much to start with but my symptoms, as annoying as they were, never
really got in the way. By that I mean I would recover from microsleeps
and catch up on my surroundings as if nothing happened or I could have a
very dedicated family to haul me out of bed as painful as it might have
been. Generally the latter wouldn't work so I would remain asleep but
catch up on any schoolwork etc. (I've spent my entire life making up for
what i've missed in school because i've been paralysed in bed). My last
year of high school was so stressful (a few factors, mainly an
unsupportive faculty) that i remember seeing very little sunlight over
the course of several months. I figured that my narcolepsy was triggered
by stress, so during times where i've had no obligations i stopped
taking my meds and kinda, just... let it be. If i needed to sleep i'd
sleep, and i would let my body do it's thing which oddly enough meant
that i wouldn't sleep for a longer period of time and be more rested.
Anyway... since i've started university things have changed...
weirdly. I haven't really been taking any medication unless it's close
to deadlines or exams. But my symptoms have taken a turn and i'm not
sure whether to be worried or not. Basically my sleep is a lot more
fragmented, and i keep waking up throughout my night, but i can wake up
just fine in the morning. I would have an okay amount of energy
throughout the day, enough so that i can function and no microsleep or
cataplexy episodes have been seen by my friends. But now i feel tired
ALL the time, i have dark bags under my eyes but i can go a night or two
without sleep which in turn makes me feel awful.
I know narcolepsy can develop with age, and this is seriously strange for a narcoleptic to say.... but i miss sleep.