I know there are a million other posts that address the same issues, but I felt like posting a more recent one.
I've been struggling with symptoms of N for years and I recently did a sleep study that was inconclusive, BUT the doctor has narrowed it down to Idiopathic Hypersomnia OR Narcolepsy, because I clearly have hypersomnia and I also have many N symptoms. I had to wait a month for my appointment (it's horrible trying to get into a doctor's office in Santa Barbara) so I won't see my doctor till April 4th.
At first I was so relieved even though I don't have a definitive diagnosis, because I thought to myself "VINDICATED AT LAST".
I was so excited to tell my friends and family that they found something and that I am not just a lazy blob.
However, upon my telling my boyfriend, mom, best friend and briefly mentioning it to a couple of people at work, I feel like they are being even HARDER on me now. How is that even possible?!?! I now just tell everyone I have Narcolepsy because when I even MENTION the possibility of IH I get these blank, zombie like stares almost as if I made up a sleep disorder as an excuse for poor academic and work performance.
At first, my mom reduced my illness to a fondness for naps and said "We can cure your nap problem" with natural remedies of course. She has long been convinced that sleep paralysis and HH are demons trying to attack me.
I kind of figured my mom was going to be a lost cause so that I can deal with but today I received the most hurtful reaction to my disorder when I was explaining to my best friend that my medication that I take to go to sleep at night was making me even more drowsy and tired and I felt a little more energetic this morning since I didn't take it. I told her I am going to talk to my doctor about switching medications to which she replied "Why don't you just not take anything?" I was dumbfounded. Her reaction indicated that no matter how many times I had explained N and IH to her and how I have a sleep study PROVING my problem, she just doesn't believe me and/or take me seriously.
Should I keep trying to get people to understand, or is it easier to just pretend you are normal and not tell people about your disorder unless absolutely necessary?