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Clumsy, Oblivious And Confused! Sleep Related Symptom?


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#1 SnoozleBear

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Posted 20 March 2013 - 12:47 AM

Hi so followingon from my last post, about having a long term sleep problem.. saw the sleep specialist for an intial consultaiton.. after about an hour appointment he suggested it vcould be Idiopathic hypersomnia or narcolepsy...but that I would have to go off my meds and wait a week or two and then he was away for 3 weeks... but I have an appointment for the 23rd of April for a review to see if being off meds makes any difference, If I am still exhausted he said we will make a time for the slepe test and nap test. He said my sleep and symptoms were definitely abnormal though from what ive said.

 

I had a horrible nights sleep last night, fell asleep at 9.30 dreamt till 3am woke up well asleep a few mintues later then woke up again at 4.30am wide awake. lay there for 45mins finally getting up, drank water, walked around, sat and watched boring infomaercials on tv - finally went back to bed and fell asleep at 6am dreamt again until 7.30am my cat woke me up, fell asleep again, dreamt till 10.15am finally managing to get up..so Im extra tired today, I aslo reduced my meds last night, I dont know if that means I would sleep more or less.

 

Just reading more on the internet about various forms of N related symptoms like cataplexy, memory troubles etc

I had a few questions I wanted to put out there, I have always been, and still am extremely clumsy and forgetful...

My mum used to get extremely frustrated with me, as I'd come home from school, and tell her I'd lost my umbrella, watch, lunchbox, pencilcase etc for example I lost 2 watches every year or two in elementary school and in senior school 4-5 watches on avaerge every year...I also forgot bigger things such as forgetting to bring home, or bring with me (more often thasn not) my violin on days when I needed it, sport uniform about every third lesson etc... My memory got a lot better for a while but seems to be going down hill again...

More impoirtanantly, also a long term problem that has gotten worse, my clumsiness! I used to trip up stairs, down stairs, and fall over my own feet a lot as a kid, now I just fall over my feet. But there have been new things over the past 5 years or so... My boyfriend says "Babe, watch out! you must be in your own little world" as I seem to be oblivious to cars, and in crowds, I repeatedly walk into, infront of people/objects and not notice, until my partner grabs me by the hand and pulls me back stops me, and tells me to be more observant/careful....I usually tell him off becuase I dont believe that ive done anything. (same with my mum when she says, ar e you drunk? your slurring your words.." I hardly ever drink and only two drinks at most.... so.. its not that..but again dont notice)

Perhaps the most promenant thing I notice, is no matter how much I try and focus on my hands, (have also tried relaxing and not focusing) and not dropping, knocking things...it seems im cursed,...I dont always loose control completely but I feel a strong weakness and tingling in my hands, wrist, sometime whole arm... sometimes (the tingling/weakness and sometimes dizziness seems to spread past my arm to my whole body and I will generally feel very confused, dizzy, or sleepy. I tend to drop objects (especially small objects) and have trouble e.g stacking plates, cuttlery, or carrying lots of things (trouible wityh balance) I get very frustrated after the third time of trying to put a knife in the drying wrack cuttlery..thing..and dropping it instead in the sink....Also..and I *dont* understrand how this happens.... but if I put an object down in a procarious place... I usually remember its there, but somehow wihtin minutes of putting it there and trying not to knock it over, ive e.g moved my arm, hand, lost balence and accidently knocked a glass and its smashed, or (most frequently - at least 2 times a week) dropped food, spilt water/knocked over a cup

It happened ...the tingliness, strong confusion, weakness, and diziness about 15 minutes ago.... I sat for 5 minutes thought I was okay, and tried to come here to type here on this forum and ask questions... my fingers had a horrible time hitting the right letters, and I was stopping mid sentence, as what I was going to type dissapeared ...im still struggling a lot with confusion right now... how long does this usually last? its frustrating...difficult to do anything, nd exhausting! I wasnt aware of an emotion....but might have been feeling anxious becuase of reduced meds, and more-than-usual lack of sleep?...

 

I had some more questions...but I cant remember them right now... oops! . I will post my other question when I think of it, and try not to post so many questions that I take over the entire forum heh sorry just lots of things and need someone advice.

 



#2 Megssosleepy

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Posted 22 March 2013 - 11:32 AM

Sleep deprivation definitely can lead to forgetfulness, confusion, and clumsiness.  

 

It sounds like you may be having Cateplexy and micro sleeps.  If you don't remember doing something and your boyfriend or mom said you did, you could very well have been mostly asleep just going through the motions.  Does the tingling happen when you are having a strong emotion? 

 

I get confused/fuzzy when I am fighting a sleep attack.  For me its like a giant fog weighing itself down on my... and I fight and fight to stay awake... the worse the attack the more fuzzy I feel, and it take some time to shake it off.  Recently I try to get up and move around to shake it off.  I stretch/walk/do squats  anything to get my head clears and heart rate up.



#3 SnoozleBear

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Posted 23 March 2013 - 02:11 AM

Hi Megssosleepy,

thanks so much for the reply...I was/am feeling quite alone/desperate, but it helps to know that someone else might have experienced something similar...

The tingling usually (more often than not) happens when I am emotional, mainly (stressed, or anxious.. although sometimes when frustrated angry and sometimes if i'm laughing *really* hard - but this one not as much).

 

I'm not sure if anyone has been home to see me move things, fold clothes etc. although my partner does get extremely frustrated, when I say "Lach...have you seen my phone?? I put it right here, just before..." at least two to three times a day (not exaggerating) . Also I often don't remember walking into objects, especially walking right in front of people, across their path etc. I usually have to be told about that... from memory, and what ive been told, I have my eyes open, but im not registering what's in front of me/around me....I always thought I was too lost in thought... but these thoughts generally start to run away with themselves and become...just plain odd, dream like. So who knows? I might be alseep for a minute or so at a time? is it possible to walk (all be it poorly) while sleeping?

 

Yeah, ..I guess I could describe it as fuzzy... I generally feel really tired, but this is more like a wave of fatigue/being very sleepy suddenly washes over me...the tingling and weakness starts in my hands or knees, sometimes both, and spreads, then the confusion hits, and my eyes swing in and out of focus. I will definitely try to stetch/walk/pace next time it happens and see if it helps :)



#4 eph

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Posted 24 March 2013 - 02:40 AM

I'm sorry to hear what you are going through :(

 

I'm sure your doctor will have you do a sleep study but I would also get a full neurological examination as well (motor skills/reflex tests, MRI, EEG etc.). The symptoms you have described could be narcolepsy but they also sound like symptoms of a few other neurological disorders that have sleeping issues as a symptom as well. Cataplexy is usually only triggered by strong emotions and they say that it is more often triggered by happy emotions (the main trigger being laughter). It seems like what you're experiencing is way more constant than typical cataplexy but "typical cataplexy" has a very tight definition and I've read about a lot of different ways to experience it.

 

It definitely sounds like you have automatic behavior but the episodes and dream-like states could also be side effects of your medications (not sure which ones you're on so only you could answer that). Doctors still aren't sure if I have IH or N but I have similar issues with bumping into people, the phone thing happens to me almost every day, AND my mom also accuses me of being drunk and slurring when I am 100% sober (never related that to the sleep disorder but that would make a lot of sense!). As far as my sleepiness, Megssosleepy pretty much described what I experience on a daily basis to a tee.

 

All in all, it is a definite possibility so I would go through with the sleep study ASAP but also focus on the clumsiness/tingling that you did in your post when you see your doctor as it seems like this is the most troubling symptom and it is a mystery as to what it actually is. Hope you find out and feel better soon!



#5 DeathRabbit

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Posted 25 March 2013 - 01:30 PM

You seem to be handling the confusion pretty well it seems to me, so kudos for that. I can't make long articulate posts like that when I'm as tired as I am today. If I'm confused, one or two liners are about the best I can muster. Unnggh, I needed a longer nap; my lunch nap just left me feeling stupefied with sleepiness today.



#6 DeathRabbit

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Posted 25 March 2013 - 01:33 PM

Sleep deprivation definitely can lead to forgetfulness, confusion, and clumsiness.  

 

It sounds like you may be having Cateplexy and micro sleeps.  If you don't remember doing something and your boyfriend or mom said you did, you could very well have been mostly asleep just going through the motions.  Does the tingling happen when you are having a strong emotion? 

 

I get confused/fuzzy when I am fighting a sleep attack.  For me its like a giant fog weighing itself down on my... and I fight and fight to stay awake... the worse the attack the more fuzzy I feel, and it take some time to shake it off.  Recently I try to get up and move around to shake it off.  I stretch/walk/do squats  anything to get my head clears and heart rate up.

I will second the exercise as a good way to fight the sleep attacks, although, for me, I find it has to be really strenuous exercise to be of real help. If I get on an elliptical or treadmill and just go at it as fast as I can without passing out for about 10 minutes, the fog will usually lift and stay lifted for the next few hours.



#7 Megssosleepy

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Posted 27 March 2013 - 01:12 PM

I wish I had an elliptical at work!! haha that would be great!

 

Also I agree about the long posts... recently I have been having a hard time making my responses make sense. Like I will start writing something and then just give up knowing someone else can write something better!  :)



#8 Megssosleepy

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Posted 27 March 2013 - 01:27 PM

I'm sorry to hear what you are going through :(

 

 Cataplexy is usually only triggered by strong emotions and they say that it is more often triggered by happy emotions (the main trigger being laughter). It seems like what you're experiencing is way more constant than typical cataplexy but "typical cataplexy" has a very tight definition and I've read about a lot of different ways to experience it.

 

The thing about Cataplexy is we all experience it very differently.  For some is a full on collapse for others just a drop of the neck or slurred voice.

 

I don't tend to have strong emotions but the few times I have they were being very upset or very panicked.  My C is triggered mostly by being frighted/startled.  Like if someone came around a corner and it started me... not at all a strong emotion but I can feel the weakness in my legs they will tingle or I may loose my balance really quickly.  When I laugh my legs also get tingly and I normally fold at the waist.