So I finally got to see a General Practitioner today and to be honest it was a fairly disappointing visit, but I hope that It wont put people off of seeing their doctor about narcolepsy. (Note this was the same doctor that tried putting me on the same antibiotic for my acne that i'd already became resistant to 2 months before, durr).
So I sat down, explained how I felt tired multiple times in the day; naps help a little, but not a great deal. I explained the kicking jittering in my sleep, explained the REM sleep disorder-- falling into REM sleep within minutes, having wild dreams, feeling my eyes going forward and back, etc. I don't have cataplexy (loss of muscle tone, which can cause you to fall), but not all narcoleptics have cataplexy. So I told her all of that and showed her my diary that i'd been making, still she couldn't make a diagnosis.
So I told her about my dad having the same problem-- having to take naps and drink loads of coffe. She looked at me and said "it might just be you"-- what kind of doctor says that?? Oh yeh it might just be you!! Yeh sorry your heart failure sir, I think it's just you, bollocks. So she said I sounded a smart person and asked what do I think it is, I told her narcolepsy, she disagreed entirely-- said I have no abnormal symptoms, it would be very rare because it's 1 in a million chance that you have it and also I would be a lot more tired than I am now-- how does that work?? I couldn't barely keep my eyes open all day, felt like falling asleep all day and an hour before going in I had to take 200mg of caffeine just to keep awake.
. I was pretty pissed off at that point. She said let's look into it deeper and order you a blood test, I said ok that's a start I guess. Then printed the blood test letter out, handt it to me. I sat there and said well what shall I do in the meantime? She said "just sleep as much as you can and try napping when you needed it", my reply being "How do I sleep when i'm at school??" and well she just said "I know that's hard but you will have to deal with it for a while". I asked about seeing a sleep specialist and she said that's highly unlikely that we go down that route but we may have to, so we will get your blood test back in the next few days to rule anything else out and go from there.
So I was pretty pissed about how uninformed and how unsympathetic she was towards narcolepsy in general. What do you guys think?