I feel like lately my medications have become my enemy.
-Xyrem, 4.5grams, 2 times a night (for cataplexy and EDS)
-Topamax 100MG every morning
-Provigil 200MG, Twice a day
Lots of advil/tylenol/redbull
I'm still tired. I'm still exhausted. I wake up at 6am, take a Provigil so I'm good to drive and by 7am when I get in the car I'm ready for a nap. I struggle through my day with every fiber of my being. Ritalin didn't work. I'm always cranky and angry and looking for my next nap. I feel like a drug addict, except instead of crack or speed I'm addicted to sleep. I take my medicine like it says, to the T, but to no affect. I feel so hopeless most days but I hide it because I don't want anyone to know I'm struggling. I still work 40 hours. I still manage to drag myself out of bed on the weekends for activities with my boyfriend but I hardly feel engaged in anything. I fell miserable and utterly helpless. My doctor doesn't know what to do anymore and simply tells me to lose weight. YOU DON'T THINK I TRY? Why yes! I'D LOVE to get out of bed at 5 FREAKING AM to RUN in place for an hour when I'm already constantly tired. FANTASTIC IDEA, CAPTAIN AWESOME. I barely eat anymore because I'd rather sleep than get up and fix food but I don't seem to lose much weight.
I don't know what to do. If any one has any suggestions, I'm so desperate I'll try anything.