Posted 12 March 2013 - 10:31 AM
My question is, for the last year I have been having episodes that I thought were low blood sugar. It seemingly comes out of no where, but always when I'm at work and under a lot of stress. My legs dont get weak per se, but I stumble and slur my words. It comes on quickly and only lasts at most 15-30 secs. I have checked my blood sugar after and it was normal per recommendation of my Endocrinologist. I am in the medical profession and have been concerned from the outside looking in it appears like I'm drunk.
Anyways, I did not mention this to the doctor because I didn't it was "sleep" related. I called the office to ask them to tell the doctor in case he did in fact want to do a sleep study. I told them I don't want to be in Provigil for 3 weeks, then at the next appointment he decide he does want a sleep study and I have to get off of the medicine. I was told by them that I wouldn't need to get off of it if he did want one. Does that seem right?
I would appreciate you guys personal expertise thanks!!
Posted 12 March 2013 - 10:51 AM
Not really. Anything like Provigil is gonna make it harder to fall asleep, and sleep studies are already notoriously uncomfortable. I suggest a two week black out period of any psychotropic whatsoever before a sleep study, otherwise, the results might be skewed. Some of these sleep techs are horribly misinformed from what I'm seeing others post. One person on here had a sleep tech get mad at him because he/she was not falling asleep and "ruining the test on purpose." But yea, my doctor actually told me that he personally recommends 3 weeks of no meds before any sleep study, so I would say, yeah, at the very least, two weeks of no meds. I know that sux, but it sux more to be told that your sleep study is inconclusive, because then the insurance might quit paying for your meds.
Posted 12 March 2013 - 10:56 AM
Either way, a sleep study is the best way to determine what is going on for you. A polysomnogram (PSG- night study) and MSLT (daytime nap study) is the gold standard. Make sure your doctor is fellowship trained in sleep medicine-usually a neurologist. That is different from just Board Certified in sleep medicine, which is often a pulmonologist. Unless your doctor is familiar with Narcolepsy and Cataplexy, he/she will not know what to look for.
I also did not think I had Cataplexy, but I do- I just didn't know it. Once I was pulled over for a minor speeding violation. When I soke to the officer, my speech was slurred and my neck was wobbly. Next thing there was a second police car and they were searching my trunk- yikes. So, obviously I appeared drunk to them. Everytime I was at the airport and hurrying to the terminal I had a heck of a time. I stumbled and dropped my bags and had to stop several times. I often dropped things in my hands, like a coffee cup. But I never made the connection that this could be connected to my insomnia and daytime exhaustion.
I think you are wise to do your homework and get the right test for the right answers. Starting with the right doctor is the best first step.
Posted 12 March 2013 - 04:21 PM
You should defiantly get a sleep study done. When I had it done I wasn't on any sleep meds, but I was on other things and I was able to take them.
I get slurred speech when I'm having a really bad sleep episode. Usually they will hit me without warning, all off a sudden I will feel extremely tired, can't keep my eyes open, brain fog and I start slurring my words. I actually didn't realize how bad it was until one day my sister said I sounded drunk. I'm aware it's happening but I just thought I sounded tired. Eighty percent of the time I continue to function, and sometimes I don't even fall asleep when I can lay down. It can last 15 / 20 minutes, before I start to feel like I can concentrate again.
Posted 12 March 2013 - 10:29 PM
It's interesting that others have the "drunk" appearance with their cataplexy. Are there any other people out there who have similar cataplexy episodes that are willing to describe them?
Posted 12 March 2013 - 10:52 PM
I can relate to the slurring words and being sort of clouded over in thought, but it is different and/or more of a continual effect, rather then sudden sort of occurrence.
It is sort of hard for me to consider it the same as, clear cut Cataplexy where it is an all of a sudden flickering or ragdoll effect; but, I can relate to it entirely and would say it can be really hard to pick up on, for myself. Often I can tell by others misinterpretation or confused looks, perhaps I note my speech also being a bit off. But, that sometimes feels like there's no trigger besides, perhaps it being cold, or being more excited than I realize.
Simply, I wish the terminology would be broadened regarding, especially Cataplexy. I hope that's not a selfish thing to say? Such, has for a long while been quite apparent to me, and likely to many others (who learn about it), I'd imagine.?
It just seems that Narcolepsy and/or Narcolepsy with Cataplexy both, all together, need some real updating in the main terminology and perhaps even some sort of scaling of the variations or severity level/s, to do with different intensities and/or effects of the main variable (at times, between such) symptoms.
Regardless, I do not believe in a 'normal.' So in a large, odd way, perhaps the above could never exist, anyway/s.?
One day, perhaps, or perhaps not...