MINItron, good point and interesting what you say regarding your experiences with Cataplexy.
I feel that, or it seems like in hindsight that, being around certain people who I know well who have very strict attitudes and perspectives, it can seem like such actually decreases my likelyhood of Cataplexy occurring, when with/around them. Yet, it can, although it seems to occur mostly or more frequently when I'm in a place of comfort and around those who are understanding.
I do collapse on occasions but more often I'll have a facial/neck weakness very briefly, directly in response to some trigger; 'varying degrees' of both cause-triggers and effects-weakness/paralysis. Very much I've noted odd fluctuations of when/how/what hits or triggers me. Stress/Anxiety/Nervousness of any sort, and especially in any grave amount, dramatically increase the chances of Cataplexy occurring, for me...
Well said, 'emotions switch off.'
Seemingly, similarly for me, in 'emergency and/or driving' sorts of moments, activities, and/or responsibilities, there thankfully is strength.
Never have I had an episode while driving, although for years and since Cataplexy became interfering in my career (construction is stressful and on sites, the joking is endless) and also in my interactions with friends as well as random people, I've restricted myself from having any passenger/s (as having another in the vehicle, for me, does create a risk).
I only drive when it's of actual need, very limited amounts maybe a few times a week, with complete attention and, preparedness to the best extent that I can manage.
Knowing one's own boundaries and limits, as best as one with this can, is a crucial element of the juggling.
Responsibility, being good, always comes first in my mind, I know it doesn't for many.
I agree with the first paragraph in the following article, in link below, and think it should end with this addition; 'and even if that behavior
is good.' http://medicalxpress...-patterns.html (totally unrelated to topic though)
To have known what I had/have as a child or teenager, even young adult, is an impossible thing for me to imagine; skateboarding could not have prepared me better, or helped me adjust along with, (I like to say, because I know it did) for Cataplexy though. Reflexes (of the body-positioning, gauging of angles, knowing perimeters-) without reflex (of
the muscles)! Have definitely had some near not good falls, hit another once in their knee, with my head as I awkwardly went down immediately like a ragdoll; that scared me, but it was in my kitchen and I was joking around...
To imagine reading this all, to go back and have no experience of it personally, somehow this all would seem impossible to comprehend. Narcolepsy with Cataplexy is complicated, to put it lightly.
I can say basil44 that I've had days and periods of time, where I feel sort of drunk physically (not mentally), sort of staggering as I walk and/or feeling slightly almost woozy like. Also, at times the cloud like heavyness and/or wearing weighted clothes-like physical effects occurs. Not tiredness, not fatigue, but quite off...\