Ah! Next week I meet with the women who 'read my PSG.' The nurse called to tell me everything looked normal..not even the doctor. After seeing my last two specialist I am running out of options. Seriously. I am healthy as a horse and I have no joint pain for CFS.
I was looking up her credentials to see if she specialized in sleep medicine, ect. A previous thread on here indicated it was best to find someone who focuses on sleep medicine and not a pulmonologist.
Um, she is a: board certified internal medicine, Pulmonology, and sleep medicine. This does not sound good for my diagnosis. Plus, even if she has no experience, I would fail the MSLT. I could not fall asleep for the life of me for me PSG. My mind new it had to so it didn't want to. Plus it was freezing!
Are there any questions you would recommend asking her specific to Narcolepsy or other sleep issues unrelated to pulmonology? Do her credentials sound ok?
I tried getting in with a neurologist, but they require a letter from my doctor and she won't send one yet. She actually told me ' well your on stimulants, see if those help.' UM. Yep. Their great-I love feeling irritable and depressed while still having EDS in the afternoon once they wear off.
I am just ranting. It's unbelievable how hard it is to find someone who can diagnosis (or throw ideas out at least) or someone who doesn't want you to just disappear.