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Hemochromatosis(High Iron) & Narcolepsy Symptoms


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Poll: Hemochromatosis(High Iron) & Narcolepsy Symptoms (5 member(s) have cast votes)

Do You Have Narcolepsy and High Iron (Hemochromatosis)?

  1. Yes (0 votes [0.00%])

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  2. No (5 votes [100.00%])

    Percentage of vote: 100.00%

Do You Have Narcolepsy and Hemochromatosis w/o Cataplexy?

  1. Yes (0 votes [0.00%])

    Percentage of vote: 0.00%

  2. No (5 votes [100.00%])

    Percentage of vote: 100.00%

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#1 2Tired4This

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Posted 20 February 2013 - 03:22 AM

It's come up in some of my bloodwork that I have A LOT of Iron in my blood at the moment. I don't really know the exact # but the doctor actually thought my parents were giving me Iron supplements because of my levels. I only eat red meat a couple times a month. I have yet to look into this any further, but Hemochromatosis (or high iron) can give you extreme and constant fatigue. 

 

Does anyone else with N have high iron? If you have N and high iron are you cataplectic or non cataplectic? 



#2 MINItron

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Posted 20 February 2013 - 07:36 PM

I don't have hemochromatosis, but when I donate blood my iron level are normally in the upper range of normal. The only time I ever went above normal I was quite dehydrated. I have mild cataplexy, and moderate, but manageable EDS.



#3 munky

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Posted 20 February 2013 - 08:47 PM

I have N w/o C, and no hemochromatosis. My primary care doctor has been doing fasting bloodwork on me every 3 months for the past year, because of some other vitamin deficiencies and a borderline cholesterol count she noticed in my yearly physical, but there's been no mention of any issues with Iron. My next appointment is at the start of March, so I'll try to remember to ask about Iron levels.