so after a long process, (see earlier posts) I saw a doc in Ney York who said the doctor at Jefferson is dead wrong and I do have Narcolepsy.
He has recommended to my doctor at Einstein that I start xyrem at a 4.5gm dose. I am quite nervous since I have strange REM crap and lots of interesting parasomnias.
So I have an appointment Wed. to meet with the Einstein doc....How long should this whole process of getting the zyrem take?
I was a Nationally certified pharm. tech for 6 years and I'm so not even used to mail order let alone the xyrem. What kind of process did you have to go through from the doctor prescribing to getting your meds?
I'll keep you all posted
For me the process was pretty quick, I finally told my doc I was willing to try it, he gave me the DVD to watch and the next day someone from SDS gave me a call and I got my package the next day (a Saturday). You can only get Xyrem through SDS and they have a co-pay discount program. I was originally told I would need to pay $600 but I only pay $35 a month.
SDS calls me once a month to see if I am ready for my next shipment and it normally comes the next day.
Also you said your Doc wanted you to start on 4.5? You will be starting at 1.5x2 and then slowly (very slowly) tirate up to 4.5x2. The tirating process took me about 3 or 4 months.
Oh and Xyrem takes care of REM problems once you are taking the full amount. I still dream but not like before and plenty of times I cant quite remember them unlike before.