Well a week or so ago I has my sleep study done, but I need to wait 2 more weeks until my appointment so I can review the results with my doctor (yyyyyyaaaaay waiting).
I have been having EDS since about 19 or so and have just turned 25. This new doctor I am going to was the first to ever take my claims seriously and not brush it off as "hormones" or "allergies". I think it helps that I am now in a medical degree program and not just some punk kid. He asked me about my habits and I told him that I am always tired (except sometimes I get a breif energetic period from about 8pm-11pm). It doesn't matter how much or how little I sleep I just am tired. If I don't nap (I can force myself not to but it is unpleasent) I am a dead eyed zombie staring unblinkingly at the wall forgetting what I am doing or saying. He check out my bloodwork and did a bunch of baseline tests, but it showed up WRI. So he had me do a PSG a few months ago to check if I had sleep apnea, but I did not snore or move my legs the entire night. I did have multiple spontaneous arousals, however, so they recommended a MSLT (especially as the sleep study is done in a basement and there would be no sound or light).
I went in for my MSLT and slept a little deeper this time, but still remember waking up a few times (mostly because they use waterproof mattresses that crinkle when you move). Based on lights out and wake up I got about 7 and a half hours of sleep. During the daytime portion I apparently slept on all 5 naps (although one I only slept briefly... I think it was the first as I was nervous). I repeatedly woke myself up during the naps due to me overanalyzing if I was actually sleeping, but I do remember dreaming during them. At least I think it was dreaming, sometimes it is hard for me to figure out if I am actually asleep or almost asleep and letting my imagination run away with me.
There were a few things I had questions about, but it did not occur to ask me during the test:
-They said that sometimes they only needed 4 naps, but in my case they went ahead with all 5. Is there a specific reason for that?
-When I woke up in the morning the tech said it looks like I was "seriously dreaming" and that I might be having REM rebound. I don't have sleep apnea, and for the entire month before the test I was on vacation (I highly doubt was sleep deprived). I am also not on any medications at all (well except for my morning energy drink).