I'm posting here because my research has turned up... a lot of nothing.
I am DX Narcolepsy without Cataplexy. Treatment is going well.
Recently, though, I have had some weird issues appear. Without any change in volume, my music or TV might suddenly become inaudible to me. At other times, it may become unbearably loud. (Like it 'smarts' my ears almost.) Agian, this is WITHOUT changing the volume or how close I am to the speakers. At first I thought it was stuff like a new song or a new scene in a movie... sometimes the sound levels change, right? But I've now noticed it mid-scenes AND mid-songs. It doesn't happen a lot, but it really bothers me when it does.
The other thing is hard to describe. It's like, I'll be looking at a picture, an image, or even a screen, and for a moment or two, I'll have no idea what I'm looking at. By that I mean, the shapes don't translate to anything for me. I remember a particular time when some movie had this shot of a boat in the ocean from overhead. It was this tiny boat in a sea of blue... but for the first few moments I looked at it, I couldn't see the boat. I couldn't tell it was the ocean -- like my brain thought it was some abstract art or something. If a person had asked me, "Hey, what is this an image of?" I would have no response. But that lasted for a few moments, maybe a few seconds, then I could see the boat on the ocean and everything was fine... But the experience was startling. A white boat in the ocean isn't like a murky black and white photo or sonogram or whatever, where the objects are indistinct. The objects were clear -- just not to me at first. I don't have a word to describe what this is.
Neither of these things happens terribly often. And while there are times that I cannot make out what is in an image (like a weird abstract photograph, or something with faded colors/distorted shapes/etc.), it's never been like this before. I wear glasses and have bad eyesight (REALLY bad eye sight).
I'm in my mid-twenties, and a part of me is hoping this is just me getting older. OR that it's related to be tired or something. The truth is, when I try to describe this to my doctors, or even now here in this post, it's difficult for me to find ways to explain it. My phycian didn't seem concerned over the hearing thing -- but it doesn't feel normal. Is it normal to have this kind of fluxuation at my age? And if so... is there a word for it?
Also, I had a head MRI done recently (my neurologist said I needed one run regular and one run with multiple sclerosis protocol to ensure my narcolepsy wasn't secondary to MS), and my brain is OK. SUPER, even.
Thanks in advanced,