I had to start a new account because my old email address had a crazy, fraud thing going on, but I closed that email account before changing it on a few websites so on the advice of an admin here, I have a new account.
I saw my pulmonologist who was in shock about the MS. He kept repeating it during the appointment, "I can't believe it."
He has blamed my sleep problems on the MS, which might be true, but my biggest concern is that most of these symptoms have been going on since I was a young girl and 6 year olds don't normally get MS. He said he doesn't think it is worth repeating a sleep study or MSLT. I would imagine MS causes sleep disturbances, but I think he is also content calling my sleep problems being related to MS. He wants to see me in December to see if the Avonex is helping or hurting the sleep, but I think that might be my last appointment with him.
I talked to my PCP about it and she said she is going to try to investigate other options for another sleep study. She isn't convinced it is all related to MS since my sleep problems began when I was really young. I think I can see why my pulmonologist thinks it could all be blamed on MS: muscle weakness, fatigue, EDS, slurred speech, bad memory, attention deficit, vidid dreaming, even the HH. But if I've been symptomatic with SP, HH, EDS, vivid dreaming my entire life?
In other news, my vision is still pretty bad in the right eye, but it has improved. Nothing is getting worse right now, which is awesome. I'm going into the fourth week of full time classes so I'm keeping busy. I recently switched from regular Ritalin to Ritalin XR which is much better than regular release/immediate release. It doesn't last as long as I would like, but it is much more gentle and I haven't fallen asleep in class yet. That's a big improvement over past semesters.
Back on the MS front, I'm going to pay for a consultation with a nutritionist at the end of the month. I've overhauled my diet, but I know I'm not getting enough good fats even with the hemp oil I take (instead of fish oil) so I'm hoping to get some good advice about diet from her.
I'm sorry that your grandma had MS, but I'm glad it didn't interfere with her functioning at all, or when it did, it was manageable and mild.
I'm glad I'm not the only one with the weird napping issues! I mean, I'm sorry you're having them, but it is reassuring to know that I'm not the only one that feels like this, even if I'm napping in a normal place at a normal time. It's really weird!