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Advocating For The Best Medical Care

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#1 Hank



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Posted 09 October 2012 - 05:51 PM

Here are some studies I have found helpful.

#2 Hank



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Posted 09 October 2012 - 05:52 PM

This is a helpful web site for checking the interactions between multiple medications


A medical explanation of Narcolepsy


“A Pilot Study on the Effectiveness of Sodium Oxybate on Sleep Architecture and Daytime alertness in Narcolepsy”



“The Impact of Narcolepsy and It’s Treatment”




Circa 1944- Narcolepsy as a Type of Response to Emotional Conflict

This is helpful to see how far understanding N and C have come- this was cutting edge theory in 1944.


#3 DeathRabbit



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Posted 10 October 2012 - 09:08 AM

It always seems like there's a tough line we have to walk. If you are really passive with doctors, they'll just do the bare minimum and no new treatments or diagnoses will ever be explored. But you also don't want to give too much push back and be a WebMD self-diagnosing patient either. He who treats himself has an idiot for a doctor and all that. Usually if I and a doctor disagree, I give him the benefit of the doubt for a bit. Then, if his ideas don't lead anywhere, I'll start to push back with more of my own. I remember my PCP from way back when, after he ran out of ideas, he just sort of gave up. He was like, "well, we've tested for everything I know and come up empty, and your symptoms are vague, so I don't know what to tell ya." IE: He thought I was making crap up.