Posted 24 June 2012 - 01:20 PM
I felt really empowered right after the diagnosis, and I am determined to make the best of this, but now I'm feeling scared, embarrassed, and frustrated!
I am on xyrem, and it is really helping! I take it twice nightly I sleep up to 5 hours! And I wake up early in the morning! I have never done that in my life!
The Cataplexy is really getting to me. And I'm afraid it is going to affect my work.
Long story short, someone broke into my house in December (even though the police now think I was hallucinating)I called 911, they came. They were nice.
shortly there after, what used to be sleep cooking became sleep dialing 911 and hiding in various places around my house and outside my house. The police understandably thought I was nuts, when they weren't thinking I was nuts they were threatening (again, understandably)false reporting.
Over the last few months I have been (by fire dept, paramedics, and police) hand cuffed, restrained onto a gurney, drugged against my will, they tried to put me on a psych hold (thank God they didn't succeed!)So after all of that I now fear the police, the fire department, and paramedics(not so much anymore because they are extremely nice and respectful now)and fear is one of my my C triggers. I was eating dinner with my husband on Friday, and the fire alarm went of in the restaurant, fire dept came, down I go. And I leave the restaurant, with a full glass of wine on the table ugh!
Has anyone else had this experience? What can be done?
Posted 24 June 2012 - 03:13 PM
Posted 24 June 2012 - 03:27 PM
all the OTHER 911 calls were while I was sleep walking, I don't have any memory of doing it.
Posted 24 June 2012 - 06:08 PM
Posted 25 June 2012 - 06:07 AM
Welcome to the network. I heard about another woman who had trouble with thinking someone was breaking in and would call 911. She eventually moved the telephone out of the bed room and problem solved. She found that by the time she got out of bed and to the phone she was awake enough to realize that it was another hallucination. As for myself I've had a few break in scares but now I realize it's just an illusion and go back to sleep.
Thank you! I have REM behavior disorder in addition to the Narcolepsy with Cataplexy. I call 911 during acting out my dreams. (my mind is in REM sleep, but my body is not. (so basically the oposit of cataplexy) But with all of the trauma around the police I am now afraid of them, even though they are much nicer now.
So when I am in a restaurant or the grocery store or on the street, and I see a poilice officer, paramedic, or fire fighter, I have cataplexy.I was wondering if anyone else has had this experience. Someone actually DID break into my house, and that's what started the dreaming about the break in and the calling 911 while I was asleep.