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2011 Vegas According To Emo


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#1 Emo

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Posted 19 October 2011 - 04:23 PM

Methinks I'll write some about the conference and you may glean some of what it was like:

It was quite a shock, going into that Las Vegas hotel. They have it laid out such that you wander right into the middle of a thousand slot machines while trying to discover where to sign in. Overwhelming cacophony reigns with, "Ding a Ding dong dong whoopiddywhoop! Clash Crash and Screech." The visual effect is just as jumbled with depictions of lurid monsters and nekkid women and flames and cannons. There are lights a-flashing and dealybobs a-whirling. John Milton had been there, I know this is so because I remember a line of his, ".. 'mongst horrid shapes, and shrieks, and sights unholy!"

But then you find the registration desk (puff puff, pant pant) and get a room with a number like 17,o75 and you travel toward an elevator. I used my earplugs because there was no getting anyplace without traversing another thousand screaming machines! They do it on purpose of course. We found a room that was quite adequate with an up-in-the-sky view of the humongous air conditioning machines far below. This reminds me to tell you of another constant assault; the battle between hot Nevada air, outside, and arctic air inside. Whenever I went out into that heat, I carried a jacket, which I constantly lost, and this was because eventually I would have to come back inside.

The hotel is all marble and glitter and glass and quite a different world indeed. And so it is predictable that you are not going to find any little paper signs, taped to the wall, directing a person to the "hospitality room" where one gets nametags for the conference, and we get our welcomes and maybe a cuppa. You hasta go back down (through a thousand insane machines bellowing) and inquire and, if you find somebody that knows, be told a room number like 24,048.

Now, if you have any mental ability remaining, you find yourself in a constant battle to retain any concept of which way is north and where things are and how to get there. Or, if your mind is (understandably) gone, you must follow somebody else. Many people found the hospitality room. Some didn't. Each hotel arrangement has its own disadvantages and quirks. Here we found a hospitality room that could hold maybe forty people with seating for twelve or so, and hundreds of conference goers. So, even if it was your first conference and you didn't know anybody, you made intimate acquaintances right away.

To get registered, you need to find a table that has Joyce behind it. If you don't find a table that has Joyce behind it, you are at the wrong conference. There has never been a NarNet conference without a table with Joyce behind it and she is not allowed to leave it. She provides you with a lanyard thingy which displays your name on an attached card. At a few conferences the name was printed in a small font and so I had to get close enough to be able to read just whose bosom I had pushed my head into. That problem was avoided this year. But, I don't know, it was kind of fun!

Sometimes

I always speak of the atmosphere I find at these do's. If it is your first, you will experience a feeling that is like putting on a warm sweater on a cold day. It is such a relief to be among others that KNOW and who require no explanations and need no excuses. It's a feeling of freedom. It is really comfortable and nice. If it is not your first conference then you will enjoy reuniting with great friends. There are great friends behind every nametag.

In this case, the amount of time you can enjoy being among friends was limited by the amount of time you can stand. For this seventy three year old geezer, that time is short indeed. Usually. I can't stand up very long, but we arrived early and I grabbed a big ol' overstuffed chair and hung in there. I maintained long term ownership of said chair by drinking no liquids. Liquids would have eventually caused me to be forced out and the chair would have been snapped up in a flash.

That's how she went up to the Thursday night signing in party. That's what it was like. I quit writing now because you are tired of reading all this. Ain't easy is it? But I will probably write more later.

nite nite
Emo
Reporting from Fort Mudge, Idaho

#2 The Dreamer

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Posted 20 October 2011 - 04:37 PM

Yes, it was quite a shock...never having been to Las Vegas before (it was surprising to find that there's so much more to the airport too, having only been there before for connecting Southwest flights)....and I knew flashing lights bothered me a bit....but I found lights in the casino really bothered me. As did the flickering lights in Ocho...at least I felt they were flickering, nobody confirmed that they were when I asked. Though the food was great.

Founder's suite was 24-048, Hospitality suite was 23-034.... I wish I had packed ear plugs or something. I did kind of know where these were, because Kathleen had tweeted about them.

But, it was nice sitting in either suite (except wondering if I was sitting in the wrong suite at a given moment and missing out) and being able to connect with so many different people. Including people that I didn't even know that I already knew...from online.

Umm, Joyce wasn't behind the registration table when I showed up....but I guess for me, its been Kathleen that I find behind the registration table.

Lawrence

#3 Emo

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Posted 20 October 2011 - 10:34 PM

Phoo... I just erased a bunch of typing. I bet it never happens to you guys. Lessee if I can remember what I said:

We went to the correct room OK, I just didn't do the research about which room it was. I just winged it! Ocho's ... Was that the Thai restaurant? We went there with the Blond Kid friday night. Oh, the Blond Kid, aka Shawn Auman, is so labelled because anybody under fifty is a kid to me and also he usta be blond. But that restaurant had a flickering light to the east (?) of the main door. It was a flicker that is typical of neon lights when they start to go bad and that's what it was... one of those newfangled curlicue lights. The Nlist, years ago had a great long thread about people have C trouble with flickering neon lights. Nobody at our table is troubled a great deal with the C but we noticed the flicker anyway.

Yeah Kathleen puts in the same superhuman effort as the rest of them and such high levels of work can't be described, at least without me getting depressed. Probably you understand the guilt when you see others doing what you are too lazy to do. I like to rag Joyce about being chained to that table just because she enjoys the (sideways) compliment. Kathleen seems to be more Irish and so she just gives me her big, pretty smile and schlocks me in the kisser.

Now don't y'all worry about all this. I've been told that I lie a lot, and it might even be true.

Meanwhile I am mulling about continuing the description of the conference from my point of view and so you may eventually suffer even greater gobs of words coming in from Fort Mudge Idaho.

Emo

The Nlist is dead. Long live the Nlist!

#4 Emo

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Posted 21 October 2011 - 11:57 PM

Somebody brought a virus/cold to the conference and donated it to me. Whoever it was, I don't blame you. The cash required to attend these things is huge .... registration, hotel, airlines, food and a thousand people holding out their hands for the slightest service given (the cigarette girl by the elevator wanted a two dollar tip for a smile). The average conferee has not much of an income anyway and so a person cannot throw it all away just because of a little cold. You have to come and try to not breath on anybody.

So, I'm a little slow and incomplete today with my attempts to illustrate one person's experiences at the frabjous conference. It was Wednesday night (we came early) that we hiked out to see what was available for supper. Made it to Circus Circus but by that time my ancient body had given out. Could not walk farther. So we went to a buffet inside. It was some improvement over the one at the hotel. The trip back that was really hard. The blond kid was trying to chirk me up and was giving encouragement when he said, "It's only a couple of blocks to the hotel. You can see it now."

Well for heaven's sake, that danged hotel is more than a hunnert stories high and you can see it from forty miles! I suspect that we only had ten, twenty miles to go.

Yet people actually pay the hotel for the honor of jumping off the top! Yup, they put on this harness that is attached to some rubberized contraption (not quite a bungee jump) that allows free fall for some distance and then it finally slows your descent so that you have a really good chance of arriving alive. I relate, a little in advance, that when we held the tenth annual Nlist supper on Saturday, with the expected sparse turnout, one person didn't make it because of a prior commitment. Mi-Linda (Sunlight6) did not attend because it was her time to go up there and jump! I have had lots of dreams that are equally terrifying but I am not going volunteer for it.

Back to the Las Vegas food. I was way off base (for the first time) when speaking earlier about the lavish spreads they put on in that town. Well, they used to. Not now. I guess the poor economy has hit Sin City as well. Or maybe it was NarNet's budget. The conference breakfasts were unimaginative and without a lot of choices given. And each breakfast was nearly identical, I think. Not so great but better than many (free) breakfasts we've had at other conferences. At least it imparted some calories and that's all we really need. But the seating was great ... more about the first big breakfast later.

Well, there it is. Maybe I'll write something more fun later... if I live

nite nite
Emo

I'm narcoleptic. I can sleep with anybody!

#5 ohiolor

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Posted 22 October 2011 - 08:47 PM

I was so very happy to see you Emo, and your beautiful lady and of course you Lawrence...among the many old and new friends at the conference. Unfortunately, the way everything was spread out, it was difficult to share the same fellowship that we have enjoyed in the past. And the clanging machines and flashing lights were even bothersome to someone without N (namely me). Emo, I think I may be the one to spread the joy of a cold to you...it really nailed me on Monday...and just got worse on the 4 day trip home (yup...we got home at 1am this morning...at least I got the laundry started and the car is unpacked). We boarded the Deuce on Monday night for a trip to Freemont Street with Shawn, Betty, Trish and one of the new board members (if you are reading...sorry I forgot your name)and as I was preparing to get on the bus, I mumbled "I hope they're ready for Typhoid Lorrie." I figure I have spread my cold/sinus thingy to 15 states and 5 or 6 other nations just on that bus ride alone...lol.

#6 Emo

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Posted 22 October 2011 - 11:39 PM

******* I wrote the stuff below before I saw the Lorrie transmittal. Lorrie, some of the fellowship we have enjoyed has been accidental. Stuff just happens. Like when we got all cracked up about the street sign in Atlanta that said "Handicapped Crossing" and we didn't know if we could, or should, use it or what?" Don't worry about the cold. Probably we both got it from the cigarette girl in the lobby.

**************************************************************************************************

I didn't take any little notes to remind me of things. I can't usually figure out whatever I wrote in those obscure notes anyway. I guess I'll just take random shots at things that come to mind but I'd better hurry before it's gone.

The major meals were seated in what was obviously supposed to be a huge, swanky supper theater place, like where you have your steaks and cocktails while those Big Names entertain on the stage. Big ol' tables seating eight (?) and although we were a large crowd of hundreds, we didn't even fill a third of the joint. I believe that this setting is the most important time of the conferences: a relaxed gathering of the most rewarding people. You don't have to listen to somebody that is yammering into a microphone and you don't have to sit still and be quiet.

You can interact. You can DO stuff and SAY things. Even with people not at your table. I don't know why, but anytime Tamara came within reach, we began pushing at each other in a most juvenile and a mock rude manner. It was actually a friendly gesture. I learned how to do that when I was ten. Haven't forgotten.

My most rewarding time in the whole danged thing came at the first breakfast, I think (but my memory is getting really suspect). The grapevine had informed me that a family at another table had a rather unusual experience .... The papa and the teenage daughter had both recently been diagnosed with narcolepsy. Mother must have felt she was the odd one! Somebody please email me and tell me their names I (typically) have forgotten and even if I get an attendance list I doubt that I can identify their last name. Anyways I rather felt that they were feeling out of place or alone in a crowd of hundreds so I went over to fix things. Can't recall what all I told them but one important thing was that before it's all done here, they will have found themselves being really good friends with people. Also people may come from all over the nation, but this conference experience is like living in a small town. Even those people they had not met will, next time, seem familiar because they have seen them around the good ol' town before.
AlsoI shared my experience with getting diagnosed. I thought my neurologist was full of beans. Here I was trying to get help with this awful sleepiness and that knothead wanted to hear about my dreams, as if my dream life had anything to do with the price of eggs in China. This seemed to have some commonality with them. Got a laugh.
Now, I didn't get to set them totally at ease because, too soon, it became "announcement" time and we were required to shut up and attend to the formal schedule. I returned to my own table even though Tamara tried to shove me off course, and I did not get back to them until the very end. But I could see through the crowd they were having a wonderful experience. Makes me smile because I remember what it was like for me.
At the very end, they came to me, one at a time, all three of them, and expressed great gratitude. They got me so puffed up, I have to brag about it here!

Once again I will try to influence the organizers to give us more opportunity to simply be together. This is the greatest help and best therapy. We will turn off our cell phones if they will turn off their microphones. I was encouraged the few times, at other conferences, when and extra hour (?) was given at lunch. And why not provide a slug of unstructured time? No silliness, no agenda, just get us together and turn us loose. Seems to me that NarNet could benefit also since they could expend less effort and/or dollars in dreaming up and providing formal sessions.

Hmmm. Whenever I begin lecturing on how to organize a conference they suggest that I become a board member and git 'er done! Ack! Stops me every time. They work so hard and long, it wears me out just thinking about it.

Nite nite
ol' Emo
Expert On Everything And Too Lazy To Prove It!

#7 Emo

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Posted 24 October 2011 - 09:55 PM

About that 25th NarNet anniversary

Our first breakfast in that huge room ended with the introductory stuff wherein we discovered that this year was Narnet's 25th birthday. I have met two of the founders, Sue Carella and Niss Ryan. Now I understand what was happening with them and the narcoleptic community 25 years ago. A bit earlier, in 1982 or 1983, after some forty six years of Narkleupsy, I was finally diagnosed! Then a few years later, my GP gave me a handout he had received from the American Narcolepsy Association. "Shazaam! " says I and I hurried to seek membership. Just imagine being able to actually find and communicate with other PWN out there! Wunnerful. But I had to use snail mail. Either the Inner Net wasn't in the email business back then or my Apple IIe computer wasn't yet equipped for email writing in spite of the fact that it had twice the RAM of its predecessor. It had 64K. --- Power to burn!

So I sent in a snail mail application and I included a drawing of my Hippo-Goggle hallucination. It pictured a hippopotamus wearing goggles. But my letter and my frabjous artwork eventually came back, bounced like the mailer daemon, with some statement like "No such address." Yup, the ANA was defunct and I was still alone against the entire world. It took yet more years before my Doc said there are narcoleptics out there communicating on the Inner Net and I should go find them. I did a search (before Google was born) and found the Nlist and joined up and then that group finally led me to NarNet. Well those gals, Sue and Niss, were part of the original founders but on the other hand I was an original loster. I never did make it to a conference until 2001.

Meanwhile, Sue Carella, an Nlister, had become fond of my stories about my fictional friend Hopalong Clyde, the narcoleptic cowboy, and his narcoleptic dog, a doberman named Adobe. She attempted to include the stories in the NarNet Newsletter but by the time we had cleaned up the sometimes indelicate language and explained the Inner Net acronyms, the tales had lost much of their punch. Frinstance Adobe was cataplexic (or dogaplexic) just the same as his siblings, those N dogs at Stanford. They all had trouble with eating because dogs so love to eat and their joy triggers their C. But just imagine what happened to Adobe when the collie over in Fort Mudge went into heat. Couldn't put that in no fambly newsletter.

I once asked Niss Ryan if they had ever held the conference in the same place twice. She said, "New York." Now we have been in Las Vegas twice. That's the second repetition in twenty five years. Phoo, that's not so bad. I repeat myself only a little more often than that.

I'll keep on trying to relate for you the Conference According to Emo, but we haven't got too far yet.

Just remember my war cry,
"Blunder On!"

Emo

#8 Emo

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Posted 26 October 2011 - 10:55 PM

This is an area where I can't give much of a report to you people that have not attended a conference. Has to do with the sessions that were offered. I've attended many, even too many, and now I prefer to just hang around and speak with those other people who have this exotic narcolepsy. Really, I'm happy enough with this approach and I attend every conference I can.
As far as the sessions, or classes, I've been to them all. Except the ones that are too silly for me. Well, at one conference I blundered into the wrong room and could not gracefully escape by the time I discovered my error. 'Twas a class on laughter offered by a non-narcoleptic in order (I guess) to help people cope with cataplexy. I ended up trying to go along with it all, in a half-hearted manner. I was, while in the midst of all the others, caught on camera trying to imitate a chicken, strutting around all stooped over, butt out, elbows flapping, and feeling dumber than a sack of hammers. I guess it worked out OK because nobody present had a C attack. I think it was because, although many people's C attacks are triggered by laughter, not that many by are caused by embarrassment.

I do like to attend most talks by the science boys, the researchers. I'm interested in, or hoping to learn about the latest research. Maybe I would find that the science boys are on the track of some truly effective meds or into some other exciting endeavor, like the time the needed volunteers to provide spinal fluid and which eventually provided really important insight into the origins of N and cataplexy. I especially seeing, in person, our main hero's, Dr. Siegel and Dr. Mignot. Dr. Siegel has a wonderful knack for helping us make sense out of complicated matters. Mignot does also and I end up enjoying his French style of English as he explains the latest "dev -- lopments."

But not this time. After I had examined the schedule, I could only say,
"Where's the beef?"

The first choices on the schedule, after the opening greetings and a well done introductory talk by Dr. Eve Rogers were (You are to choose and attend the one session that seems most appropriate or interesting):

1) "Yawn" ..... I had no idea what this might be. After asking around, I got the indication that it was some unexplained happening for "youth's" and I suspected that if I tried to fake belonging I would somehow be detected.

2) "Energize + Restore through Motion and Breath" .... Oh, says I, it's one of those things that are far, far from my own sense of reality or usefulness or credibility. Like I've done a lot of breathing and it hasn't helped a bit with N. In fact, I may give it up pretty soon. And "motion" implies other, related things like exertion or even (blush) work, both of which tend to put me down. But My Lady (a PWN) is one of those people that believe in the restorative powers of exertion. Takes all kinds!

3) "Clinical Development of Nuvigil" .... Because Provigil, for me, is as effective as tap water, I would expect little from Nuvigil and so I was not interested in its development. Or even dev lopment.

4) "Creative Writing Workshop" ... could be interesting, although not really on subject for a narcolepsy conference, but I wondered if it would amount to people being told to write some little thing (while just naturally trying to be really, really clever) and then read it to the others. A lengthy collection of recitals takes up all the available time and there it is! If that is what it was.

5) "NN today and Tomorrow" ... Uh?

That's it up until lunch! Lunch had some beef. I skipped all those sessions but don't worry, It's my way most of the time, and I'd much rather go compare life experiences with somebody I find at the coffee shop or wherever.

OK, I'm tired now, here I go now,

Hang On!!!!!!!
Emo

#9 Emo

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Posted 28 October 2011 - 07:02 PM

Here I am, looking at this year's conference schedule and I see there were great blocks of time allotted to something entitled "yawn" and it was to be located in that huge room with the big tables. I must have not have got the big picture. "Yawn" couldn't have been a session for just the young people, all twenty of them. I had best go through all the papers handed out and see if there is an explanation for "yawn" and also some of the other mystery sessions advertised in the schedule.
Frinstance, what was "Support Group for GBLT"? Maybe Green Bacon Lettuce and Tomato. Or "nia with Stacey Hall." I think I had nia once. I took penicillin.
I think maybe "yawn" was a humorous suggestion that nothing was being done in that big room.

Wait a minute while I go through the handouts:

=================

Well, I didn't find an explanation for "yawn" or "GBLT" in the handouts but did discover what the "nia" session was going to be. I ogled some googled videos and discovered "nia" is (mostly) about women wiggling. egad.

But I guess some of my confusion about these terms is due to oldfartness, which condition causes one's failure to stay in tune with the fads of the modern world.

===================================================

Three people indicated to me a puzzlement, even disappointment, about the lack of any presentations by the research people. Three comments made without being even remotely solicited, represent a much larger body of people. I too was disappointed. My first thought was that maybe nothing of any interest or importance had been done in the last year. But this is not so. Been told by those that know. It seems the lack is due to a continuing shift of attitude or beliefs within the ever-changing group of NarNet organizers. I hope they shift back pretty soon.

I wonder if the lack of real content is all my fault? When I began attending these things in 2001, the presentations were solid science! Most sessions involved talk about heavy things like neurons and agonists and gene markers, and statistical distributions and even a sleeping squid talk, delivered in impenetrable Japanese/English. Also maybe things about amygdalas and ambulating pseudopods. The next year's agenda was similar.
So, given quite a headache, I suggested (only suggested mind you) that we would welcome some fun stuff also! Maybe a dog and pony show. Something for the soul, not just for the medicine cabinet, or for the adults.

NarNet has always done whatever I asked. You didn't know that, did you? But they should know better than to listen to me! With apparent enthusiasm, they put 'er in reverse and here we are today! Not a hypocretin was examined. Well, Dr. Rogers did a fine job with the one time slot I attended and maybe I'll speak of this later.

In keeping with NarNet's modern, fluffy approach, here is a proposal that my mother would have loved! We should have somebody give a talk on "Restore Your Energy through Astrology." My mother was an astrologist. Once I summarized the art of astrology by saying politely to her, "Fiddle faddle!"
She said, "Well, of course your mind is closed to astrology, you are a Scorpio!" Catch 22 sort of thing.

But my mind isn't opposed to fluff. It's getting fluffier and fluffier all the time. Just ask My Lady.

nite nite
ol' Emo
Expert On Everything And Too Lazy To Prove It!

#10 sleepless sleeper

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Posted 28 October 2011 - 11:52 PM

i'm so happy y'all got to go! one day i'll end up at one, but vegas would have been my number one choice to attend. maybe one day they'll go back. i hope!

emo ur funny. do you have any pix?

#11 Emo

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Posted 29 October 2011 - 03:49 PM

Didn't get any Las Vegas pics taken so I'll have to send you a word picture

The place is insane. The developers are really fond of making fake stuff that is real enough to become depressing. Like the indoor forest and massive waterfall that was at Sam's Town (?) last time. Very real looking at first but then you notice that the detailed plastic foliage has no variations and the whole place is disturbingly dead and the 'beautiful' waterfall stinks of chlorine. Ack! Same with those choreographed water jets that shoot unpleasant liquid.

We went to an eatery that was so bizarre, outrageously detailed and loud it was quite funny. Da Rainforest. Must a been a good place ... waiting line was half a block long. Inside was a huge rainforest with vines and plants and trees reaching up to and covering the ceiling some hundred feet up there. All plastic and painted cement and such. Impressive outlay of cash to build and it requires an army of leaf blowers and shop vac's to keep down the dust and real spiders, and another army of artists to repair the paint jobs.

But that's not all! It is populated with animated (sort of) elephants and alligators and cheetahs and flutterbyes and a gang of unseen, loudmouth chimps. But see, the cheetah closest to us had quite a severe medical problem. Broken tail. Only about seven inches moved mechanically up and down and the remaining four feet of cheetah tail simply hung down and flopped. The butterflies forgot that they were supposed to be realistic, becoming four feet in width and looked very much like Disney cartoons as they moved their wings in a halfhearted manner.

But that's not all! Every fifteen minutes it became dark because of terrific rainstorms. Yup it rained all around us, raining into the plastic foliage, and apparently it was real water. Didn't even smell bad. Thunder, lightning and noise. Elephants trumpeting, cheetah's cheating, even loud butterflies. And of course we had background jungle music with African signal drums.

Now throw into the picture a bunch of bustling waiters and even a tour guide, with a group of followers, who would troop by our table and holler out, "And here, under the magic mushroom we have ....... " Despite several opportunities, I failed to overhear what was under the magic mushroom.

This chaos was quite enough to destroy your sense of balance and induce seasickness. Just like the lobby in our hotel .... a madhouse! Seemed to draw families with widdle kids of course. Under a certain age, it all made no sense to the kids. Add a few years and some kids were screaming, terrified. Some other kids became gloriously hyperactive.

The magic mushroom was a forty footer in width and provided a ten feet high ceiling. I, thank god, could see a large TV under there and so I was able to put in my trusty earplugs and watch college football!

Oh, I was able to stop the tour guide and inquire just what in Nell was under the danged magic mushroom? He said, laughing, "Two bears and a lot of drinkers." Yup there was a booze bar under there too.

A picture could not display what the above thousand words have imparted.

And there it is! Fine Dining in Las Vegas. The fish and chips were good.

Nite nite,
Emo,
survivor

#12 Emo

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Posted 31 October 2011 - 10:15 PM

Now lessee. Friday's conference schedule. The block of time from 3:45 to 5:00, as an example, had:

"Nia with Stacey Hall" I wrote about that earlier. Didn't know what a Nia was.

"Pregnancy and Narcolepsy" Not something of vital interest to a seventy three year old male.

"Support group Anger is one of the triggers for my mild case of cataplexy but what are
Anger and Narcolepsy" these "Support Groups" ? Does anybody host the things or do people just gather?
Would have to attend to find out. Maybe end up imitating a chicken again!

"Sustained Energy + Weight Sounds like another lightweight (pun) session to me. Always been underweight.
Loss Through Nutrition" Not fond of eating. Don't want to talk about it.

Yup. I skipped them all again! The best fun I had that afternoon was while walking the hotel's second floor which had all the shops. Saw an entire family from India, dressed in the most elaborate fashions of India and probably having little English. I simply nodded to the patriarch in passing. He seemed to be my age. He returned the gesture. We encountered each other at various places and exchanged greetings every time. It was a "hello" across cultures and languages. It was mutually satisfying.

Next was scheduled "Dinner (supper) Break with Dinner (supper) Groups departing from Registration Desk at 5:30 and 6:00"

The signup routine for supper didn't work this year. Other years it has been really helpful. I don't know what happened. I guess it wasn't very visible. There were some loose, papers at the desk. Listed on one sheet were a few people who signed up for going to "Ocho" (sp?) and there was one name, Lawrence (the California Lawrence), who wanted to go to some other place. That was it. Lawrence of California didn't make it on accounta he needed a ride and nobody went.

We went to Ocho's. One gags on the cost of meals in Vegas, or almost anyplace, and we often ended up doing the more reasonable IHOP and even McDonalds and such. But Ocho (sp?) was close and, being Thai, seemed not to be too pricey.

=======================================================

After suppers, the plan has been becoming a tradition for the Blond Kid and I and sometimes My Lady. We would find some central, comfortable spot in the lobby, along with maybe a bottle of wine, and invite all conference passers-bye to stop a while and trade lies. I don't know why, but these impromptu gatherings have resulted in some really fierce hilarity. How can narcoleptics get so rowdy even in defiance of the worry of C? I don't know but that's what happens. Of course one can let go, let it happen, without worry. We know what C is and all we do is see if everybody is in a reasonably comfortable position and then try not to step on them!
I suffer a problem that my laughter collapses a lung or two and I cannot breath or laugh until I finally can get one breath. But then I do another "Har" and it starts again!

This sort of thing wasn't feasible this time because the lobby had its thousands of raucous machines flashing and whooping. OTH this conference came with TWO rooms available for evening gatherings. One of floor 24 and one on floor 23. Therefore when one room was busy, even late at night, with an "Audrey," we could go to the other and find conversation. But the conversations were comparatively subdued and had not the impromptu turnover of some other times. Ya just never know, it all depends on how each hotel is designed.

What's an "Audrey"? Well, how do I answer that? This particular Audrey was called Cirque du Sommeil which I guess is Cherokee for Circle of Sleep. We looked in once and saw people squatting on the floor, forming a circle. They had serene, psychic looks on their faces but in spite of this, my minds eye created for them, marshmallows on sticks and a central fire.
What were they doing? I don't know. I always run away if I can. I can grok that Audrey is attempting to capture creativity, uniqueness and somehow channel "energy" through the practice of .... well I don't know what. Strange behaviors, hopping around, or adopting unusual positions. People seem to like it, I think. The "Audrey's" seem well attended. But in order to participate, one needs to embrace its oddness and cultivate immunity to feeling awkward, gotta be socially fearless or .... again, I dont' know what. I always run away if I can.
Not to worry. Whenever I have been unable to escape, Audrey has always forgiven my inability to loosen up. She loves unbelievers just as well as everybody else. Meanwhile without her tireless efforts, many would have had to watch TV in the room.

TV in the room was mostly infomercials and other really boring stuff. Unless you come up with some money!

OK, you tired yet?

Nite nite
Ol' Emo
Reporting from Fort Mudge, Idaho

#13 Emo

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Posted 02 November 2011 - 09:23 PM

My last transmittal was messed up... I used cut/paste to install into the NarNet site. The site seems to think repeating empty spaces is an unnecessary operation and deletes them. Messed up my layout. I fixee somehow.

Now then, at the Las Vegas Stratosphere Hotel, we constantly see where good ol' Capitalism is tirelessly at work. Many business designs and plans are built on the idea that irritating people makes money. Just lookee here: In addition to making it impossible to access your room without traversing all those slot machines, let's look at the second floor of the hotel. The elevators claim floor two is not floor two but is actually "R" (Retail floor). It is quite free of all that noise and chaos. What a relief! But suppose you would like to simply go to Breakfast or lunch. They also take place on the second floor. From the one elevator (the closest one) a distance of fifty feet takes you there, as the crow flies, but there is a barrier in the form of a shop. In fact, many shops. And you end up not flying like a crow but like the "Poor Little Robin, Walking, Walking, Walking to Missouri." You can't get from here to there without going on a meandering walk, twisting through twenty, thirty shops over a distance of five city blocks!

Alright, My Lady loves it when I grossly overstate the magnitude of these inconveniences because she can then easily prove me wrong, so I amend the above to only say that a short distance was transformed into a very long distance by forcing a curvaceous path from A to B. It's like your very own intestines can be straightened out to extend thirty feet! This is a fack ---- I googled it just in case My Lady reads this.

It is also true that there was a more direct path to breakfast but this involved the main floor and a thousand loudmouth machines beeping, clanging, whooping as you stagger through them in the direction of an escalator.

So by the time you get to breakfast, you are either danged tired and hungry or you have lost your appetite entirely.

But now here we are! Back in the comfort of Narkleupsyville. Seated at a big table with the delightful, but rather odd people and if you holler enough, an endless supply of coffee. That's good living!

Now I have written too much yet again. Almost forgot to mention the conference.

nite nite
Emo

I am narcoleptic. I can sleep with anybody!

#14 Emo

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Posted 06 November 2011 - 10:54 PM

Been busy (as best I can be) so you will be relieved to find this blurb is just a short one.

Overheard a bit of conversation while up there in the Hospitality Room during the frabjous conference. Subject had to do with interactions between various medications, I guess.

One gal was saying, "And furthermore, don't mix Xyrem and laxatives."

nite nite
ol' Emo

#15 Kathleen

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Posted 07 November 2011 - 10:06 AM

You are so entertaining Emo! I love reading what you write, it makes me smile! <grinning like always!>:)

#16 Marcianna

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Posted 08 November 2011 - 01:27 AM

Emo,

I am so glad I got to meet you finally after hearing about you for so long... I wish I had the time to actually get to know you a bit! I think I may just skip being on the committee next year for the sole purpose of actually attending a conference and not working it... You make it sound so much more interesting and fun than I had from my perspective.... Next year, I will buy the first bottle of wine! It would be an honor to trade lies with you!

#17 Emo

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Posted 08 November 2011 - 03:06 PM

Halloo kids!

About the hilarity in the Lobbies: It only happens during about one out of four conferences. This is often due to the hotel layout and sometimes just the luck of the draw. Frinstance, at Jacksonville, it was halfty-fifty. The lobby had comfortable sitting room for only about five people and then the area was constructed with polished stone and glass which, as you will see, was unfortunate.

A common and understandable occurrence is for a new person to become elated, being in such a forgiving atmosphere among new friends. And then, just to be able to attend and enjoy everything, perhaps it is not unusual for a conferee to be a bit overmedicated. Ah, over stimulated! So you can end up with quite a raucous discussion. Overdone. Noisy.

Team this up with the Jacksonville lobby having acoustics more worser than an indoor pool, and you have an awful racket. Oh my! I had to feel sorry for the hotel staff, trying to answer phones and run the business. They had to politely endure. It wasn't too easy for some of the participants either. My Lady borrowed my earplugs.

But I can forgive because I remember that wonderful high feeling. Loved it. Fortunately, when it happened to me at the 2002 (?) Las Vegas conference, the acoustics were forgiving. 'Twas at the first annual Nlist (endless) Supper and what happened went something like this:
Among the people still active rat chere, were Sharon Smith and Joyce and even the Blond Kid (his first conference). Shawn had suggested we tell any amusing little stories about ourselves and so I began reciting one of my Hopalong Clyde stories just as if it had actually happened. When it became apparent that in addition to both Clyde and his dog being narcoleptic, Clyde also drove a narcoleptic car, Shawn became suspicious. He said, "Wait a minute! This isn't true! right?"

Well, I enjoyed the joke of course but then, when I stumbled over some of the details, I found that Joyce and Tam Kozman both were able to tell me how my own stories went! Ho boy, did I get a big boost out of that. I became just as loud and animated as the kids in Jacksonville. But I think (?) we ALL had a good time. Only because the surroundings were more absorbent.

BTW, Clyde drove an antique car that was just naturally narcoleptic, or at least apnea-ic. It was an EDSel. Get it?

At this latest conference, things in the Horspitality Room were more subdued, even dark and a bit cold. Still I had a nice time speaking with, I think her name was Dorothylou Sand from Los Angeles. Be able to check up on it when the attendance list is published.

nit nit
Emo
Fort Mudge all

#18 Emo

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Posted 10 November 2011 - 11:29 PM

******* Other Founders*******

Well, there was another group of founders at the Las Vegas conference: Founders of the annual Nlist supper. The founders attending the supper were Emo and My Lady, the Blond Kid, and Sharon Smith. Ramon and Lorrie , honored AF's (Almost Founders, being present at the next supper) attended. Oleta joined us where? Seattle I think. But then I have difficulty remembering what happened when or if I took my danged pills today.

I suspect that Joyce, another original Founder, could not attend the ninth annual Endless Supper (I was incorrect yet again about how many years the supper has been going on) because she was chained to the Silent Auction table. Who else was at the first Endless Supper? Wal, the Kazoo Kid, who did not come to Las Vegas this year. Nor Tam Kozman. And who was it that needed something to eat before the restaurant could get around to it and so the Kazoo Kid hiked out to McDonalds to get her a hamburger? Marlene. She still writes us on occasion.

Of course the attendance was sparse. Nlist has been pretty much defunct for a long time and now is totally defunct. The supper has become something like a high school reunion. Unlike your average High School reunion, we didn't find that anybody had been impregnated or incarcerated.

The Silent Auction. For anybody still reading here and who has not been to a conference, people donate objects for auctioning w/proceeds going to NarNet. They are put on display and people can write the amount they would give. Then the next person reading the offers can submit their own offer. Of course the biggest bid wins. Methinks it was a financial success this year. Spotted Jack donated a really striking, hand made bowl fashioned from a variety of exotic woods. I bid on it but lost because of financial cowardice. Spotted Jack represents half of the membership of the Rocky Mountain Spotted Narcolepsy Sport Group, located in Fort Mudge, Idaho.

Now, back to the supper. We discovered that Ocho's final bill was unreadable. It was written in Thai script. This is because (we suspect) an automatic gratuity could be added, for large parties, without us knowing. We had left a kindly (but unnecessary) tip on the table. Har! You gotta watch those guys!

nite nite
Emo
Reporting from Fort Mudge Idaho

#19 Emo

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Posted 15 November 2011 - 12:34 PM

Sunday

Hey, I missed one session! Actually I missed just about all of them because just about all of them are of little interest to me. I'll bet there is an Inner Net acronym, BTDT = Been There Done That. Been to lots of similar sessions, or else the sessions are what I call Fluff.

But I knew that Dr. Rogers was knowledgable. Her talk, entitled Quality of Life In Narcolepsy, was sure to be on track and well planned etc. Missed it somehow but we managed to attend her next talk entitled Narcolepsy Q & A and it included some spill-0ver from the early session... It often happens that those who really have something to say cannot get it all said within the time limits.

So when it came time for the Question and Answers, we were there. Q&A's are a worry. This is because we just naturally have people attending who are truly damaged and this makes Q & A difficult. The truly damaged, needy people often can't or won't comply with requests for brevity or appropriateness or even coherency. So how can a presenter deal with the conflict between the group needs and an individual's feelings or dignity? I don't know, but Dr. Phil and Dr. Rogers can both do it!
How does Dr. Phil tell a person that he is full of crap and make it acceptable to the crappor? He does it, you know. How did Dr. Rogers deal with the woman whose question about narcolepsy somehow included the fact that the capitalists are taking over the world, or at least a certain unnamed political party, and this in turn has corrupted the pharmacies as well as the nationwide PTA and.....? I fergit how Dr. Rogers dealt with this gracefully and quickly. But she did. At such times, I can usually detect how the maneuver was cleverly accomplished, but so far I have been unable retain the insight. I'll get it some day. I once knew a college art professor who could find, and then describe all the failures in your painting and who somehow always left you feeling optimistic and proud.

So Dr. Rogers was a master at handling the Q&A, always managing to provide productive information, on subject, and at the same time respected everybody's concerns and/or abilities.

It was a good session.

nite nite
Ol' Emo

I'm narolepti. That is, N without much C

#20 Emo

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Posted 23 November 2011 - 09:59 PM

I been thinkin' about the last conference session ....The farewell session. Eveline Honig told us that the exercise we were about to perform has become a tradition. Seems a microphone is to be passed to each and every person that had squeezed into the room. Each must then speak about their conference experience, but only just one sentence please. Not too sure just how the rules were phrased. I often become less than alert when somebody is standing up there speaking and I am sitting down there, sitting. Nor do I recall the stated purpose, but I do recall we each had to begin with "I remember....."

The feeling, for me, was one of entrapment. A quagmire of things to consider. One consideration is the expectations of others. Before a person begins to speak, you can see quite a few faces expectantly displaying that sweetish (sappy?) smile universally reserved for ladies when looking at babies. Or weddings. Most of the crowd are female anyway, being the natural communicators and the most social members of the various sexes. If I should fail to speak about love and/or emotional enrichment there will be disappointment or, if I take it too far to the other extreme, they may get peevish. So I suffer a minor internal battle between wishing to be (respectfully) honest and the feeling that this is not what is expected.

Next consideration is that I'd want to say something reasonably intelligent, perhaps even creative. Egads, what? Some people found something intelligent, honest and not too danged sappy, why not me? A lot of others made me cringe while the baby-oglers smiled approvingly. A few newcomers managed to impart the feeling of their first meeting with fellow narcoleptics and that heady experience is really difficult to express.

So what did I say after, "I remember....."? I forget.

Tha's because it was something dull and quite forgettable. Dang!

Nite nite
Emo
Reporting from Fort Mudge, Idaho