Posted 28 June 2011 - 08:10 AM
Ok..... let me try this again and ACTUALLY MAKE SENSE!
Last night my hubby got me laughing so hard I could barely lift my arms. The troubling part (because limb weakness has occurred before) was that I literally could not speak. I tried to talk.....make any verbal noise....and just couldn't. It was scarey.....and then absolutely troubling where I endend up in tears. Is this normal with cataplexy? I don't want to over dramatize my symptoms, but I do feel the need to report them correctly to my doctor. He has diagnosed me with N with slight cataplexy but I am worried the Cataplexy along with the N has gotten worse.
I would appreciate any comments or suggestions.
I apologize if I don't make a whole lot of sense. I am struggling to get my thoughts together.....as usual!
Posted 02 July 2011 - 01:44 PM
I never used to get it from laughing but more and more lately I have found it kick in during laughter. I'm trying not to stress over it but I am honest about it with my doctor. They say people can go years with Narcolepsy without cataplexy and then later in life cataplexy moves in and then BAM then you are a person with narcolepsy with cataplexy. I used to never tell anyone about my cataplexy symptoms because I didn't know what it is, now that I know what it is I feel pretty comfortable talking about it.
Posted 30 July 2011 - 09:57 PM
Posted 31 July 2011 - 01:03 PM
Here's the thing. It becomes expected, and just one of those things, like if you don't eat for a long time, you're going to be hungry. Keep track of what's going on in your life when you have cataplectic attacks. Laughter might actually be the final trigger, not the only trigger. For instance if something difficult (stressful, or upsetting) is happening and you haven't eaten well, or gone to bed at a half decent time, then the laughter could be the final straw, in which case you were already heading there. So if you can recognise the smaller symptoms, you will be able to listen to them and slow down and even stop before it goes that far.
What I'm saying, is it's not necessarily worse, you just might be experiencing a lot of triggers right now, and that is correlating to the degree of the attack. Does that make sense?
Something to think about, anyway as you progress....
Keep your chin up.
Posted 02 August 2011 - 07:46 AM