2 People With Cataplexy Dating
Posted 20 June 2011 - 10:13 PM
The thing is, I think I am discovering there are some unique challenges that we face because e both have the same condition. For example:
Hanging out with 1 friend is a bit stressful on the friend because they worry what to do if we both go down at once, ie. who to help and will strangers think maybe our friend did something harmful to us!
We have to keep our mutual happiness in check because it triggers both our symptoms.
We both are cataplectic catastrophes in bed sometimes, which can be a real health concern - you know what I mean
Xyrem is a whole other set of issues unto itself!
We tend to overly worry about the other cataplexying so there's an excessive amount of "are you all right?" being asked back and fourth several times a day over the slightest things.
It's too easy to isolate ourselves from the outside world. Neither of us are currently working.
Our Narcolepsies seem to feed off each other - so if one of us says "I'm tired I need to nap" the other always joins in so what ends up happening is we spend way more time happily napping away the day each day. It's tough not having a non Narcoleptic person motivating us to do something other then lay about being sleepy or lazy.
Thunderstorms - we both cataplexy like crazy from thunderstorms - we both have to lay flat and wit it out or be strapped in a wheel chair otherwise we run the risk of cracking our heads open on the floor. Neither of us can really help the other at all when there's a thunderstorm.
Has anyone else dated a fellow Narcoleptic and similiar issues?
Posted 02 July 2011 - 01:37 PM
Frankly I'm flat out of ideas for how to go see the fireworks and at this point I hope it just rains because i'm feeling so frustrated and a bit bitter.
It takes a lot of planning to go anywhere when one person had bad cataplexy, but it takes a ton more planning when there are 2 people who have it. There are times us both having this is great, like how we both are better able ID the symptoms coming on then anyone else and are better able to catch one another and so on. And we both enjoy gettingto lay in bed laughing our asses off at the ridiculousness of this all. But when it comes to planning on doing things outside the home it's just such a pain in the butt. Unlike hanging out with non-narcoleptic friends, we can't assume the other will be able to always help us out if we collapse. Worst of all is what a huge burden it seems to be for regular people to hang out with us. They just worry too much about what to do if we both cataplexy at once.
Posted 03 July 2011 - 09:21 PM
Anyway, good luck with the 4th of July fireworks. I hope you get to enjoy them!
Posted 19 July 2011 - 09:49 PM
It's easier being with someone who has more energy then me rather than someone who has as little energy as me, then again, it's nice having company on those bad weather days when I can barely get out of bed!