Lucestrife

Cachexia?

7 posts in this topic

A friend of mine who is narcoleptic experienced a very sudden wasting last year that gave us quite a fright. He is already a lean, athletic guy, but for a couple of weeks he lost weight precipitously and seemingly without cause. He stopped running or exercising in any way, he was eating 2-3 times as much as he previously would (we would go to restaurants and he'd order 2 cheeseburgers, 2 cokes, a salad and fries, when he'd normally just get a salad), but we started to be able to see his bones. We were on a cross-country road trip and out in a very rural area for much of it, and by the time we got back to civilization (the burgers were on our way out) he was starting to gain weight back again so his doctors dismissed it. But for 2-2.5 weeks it was pretty scary. I started to be able to see the bones in his arms and legs, and ribs of course. He didn't have any eating disorders and he wasn't exercising, as mentioned. No other obvious symptoms. Has anyone heard of this? It hasn't happened since but it was pretty scary. I know that cachexia is thought to involve the hypothalamus. Could this be related to the narcolepsy?

Share this post


Link to post
Share on other sites

I am no expert, but I have never heard that listed as a symptom or complication of narcolepsy in all of my reading and research about the disease.

Share this post


Link to post
Share on other sites

I would also say this is very unusual and merits a very thorough physical exam.

Share this post


Link to post
Share on other sites

Yes!

I am not a doc The following may help with an answer.

Road trip? Full symptoms of N, genetic tested.

List all meds including OTC, food suppliments, all food eaten on the trip.

Keep the list. If it happens again make

the same type list.

Compare, look for something different than normal intake.

Have a normal blood test level for TSH and glucose to compare with TSH plus glucose during the rapid weight loss.

N is a hypothalamus metabolic deregulation of homeostasis.

Seek medical attention sooner.

Share this post


Link to post
Share on other sites

Yes. This actually makes sense. Hypocretin not only affects sleep, but it also affects eating habits/ eating behaviors. (Which I assume also includes metabolism etc. and how your body processes food and whatnot) I have also noticed that I personally seem to experience both rapid weight loss AND rapid weight gain regardless of eating habits and exercise. 

Share this post


Link to post
Share on other sites

Hi everyone, this is actually my first post.  But I have to comment on your post above Narc013psy.... I'm either losing or gaining weight.  Nothing ever in the middle.  It's very frustrating.  And in order NOT to gain weight, I have to stick to around 1000 calories a day.  If I need to lose, then it's around 500-600.  I basically feel like I starve all the time.  It sucks!!!

 

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now