A narcoleptic Episode
Posted 06 October 2007 - 08:34 AM
My son has been diagnosed with narcolepsy and he is 22 yrs. old. Prior to this he was healthy without obvious evidence of any problems. As a child he did have sleep walking and probably hypersom. as a teenager he did say he would have black out spells for about a minute at a time. But not that often and we didn't really think much of it. It was during a high stress time and as a teenager we didn't observe the episodes. When he was working full time as a correctional officer and going to school full time- without much sleep and very interrupted sleep cycles, we noticed he was starting to have problems. He began having seizure like activity. I am a respiratory therapist and work in sleep also- I thought sleep apnea at first- we got him in for testing which showed narcolepsy. The problem is that we have tried ritalin and provigil- but he has a rare case in which he will have prolonged periods of sleep but is able to act out various different activities while in a sleep state. Some a bit dangerous. You can't arouse him - he has sleep paralysis and cataplexy- but not for short periods of time. Can be for hours. We currently go to a neurologist and have a referral to Duke University in Dec ( soonest appt). He is now off work on disability and they are telling him he won't be able to work in a prison system period. While in these episodes he can act out very vividly whatever is in his mind and is very uninhibited in doing so. Sometimes will go from acting out and believing he is a young child sometime older, and at times just appears to be acting out whatever is in his dream state. Does anyone have any similar reactions or a type of narcolepsy like this. Our dr. do not have any answers- and I and my daughter in law are amazed how in depth this diagnosis is. He is currently on Provigil and it does fair- however he still has episodes. Very much induced by stress.
He also has peripheral vasoconstriction where the legs and face will become discolored from what appears to be from lack of oxygenation to those areas. Help!!!! [/i] :shock:
Posted 06 October 2007 - 10:40 AM
Posted 06 October 2007 - 01:25 PM
Also, you should check the website www.talkaboutsleep.com it has been up and running for some time and has a very active bullinten board.
Hope some of this is helpfull.
Posted 06 October 2007 - 01:53 PM
Posted 07 October 2007 - 02:59 AM
Posted 07 October 2007 - 10:29 PM
Posted 14 October 2007 - 12:11 AM