Hi! I'm a first timer
Posted 07 December 2007 - 07:15 PM
Any experience strength & hope anyone can share would be welcomed.
Thank you! [/quote]
Posted 10 December 2007 - 10:01 PM
Is your doctor making arrangements for you to have a sleep study to confirm the diagnosis so that you can start treatments, if applicable? If you are currently in limbo, and finding it hard to stay awake at school, I suggest that you talk with your profs about your sleepiness so that they do not make inappropriate inferences about why you look so tired in class (i.e. not blame it on boredom or lack of respect for their course). I am a college instructor and know that some instructors get angry when students fall asleep in class because they assume it is a misbehavior and not something that is uncontrollable. It is a good idea to let your instructors know that you are being tested for narcolepsy.
I can sort of relate to your description about falling asleep. I used to often fall asleep, but the only way that I knew I fell asleep was afterwards when I was aware that I was waking up. I was usually not aware of the falling asleep part, which was scary, and made me worry about safety.
I hope you soon get a diagnosis for your sleepiness, and some effective treatment.
Posted 11 December 2007 - 07:53 AM
Thanks for your reply. I'm a little concerned about saying anything about narcolepsy to my professors, as I am studying to be an RN. I wonder if it would affect my standing, or if it would raise concerns as to my ability to be a nurse. I don't want to jump the gun and say anything before the sleep study. Luckily for me the hospital I work for presently has a neuroscience center where they conduct sleep studies. I am planning on making an appointment this week, although I hear it can take up to 3 months to be seen. By then, school will be over and all I will have to think about is the state board exam.
The way you describe your sleep problem sounds more like what I thought narcolepsy is - just falling asleep without the awareness of it - right in the middle of doing things. So far that hasn't happened to me.
I hope things are going well for you. Thanks again for taking the time to reply, Jennifer
Posted 12 December 2007 - 10:56 AM
I come from a family of narcoleptics. I have 5 sisters and brothers, a father and a son and two nieces who have been diagnosed over the years and yes one of them is a Surgical RN. With medication and supervision of her narcolepsy by her neurologist (after the sleep labs of course), she does a great job. She is 26 and has been diagnosed for 3 years. I don't believe she has told many people where she works about her N... thats strictly on a need to know basis for most all of the narcs in my family. A few of them have had unpleasant job experiences with non-selective disclosure.
My experiences may not be what some others have had to live with, but I can say with assurence that the 9 narcs that I know doze into naps the way that you do.
Posted 20 December 2007 - 05:38 PM