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Boston Area Narcolepsy Support Group Meeting


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#1 jobreen

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Posted 25 January 2011 - 01:30 PM

:) HAPPY NEW YEAR! :)

YOU’RE INVITED!

BOSTON-AREA NARCOLEPSY SUPPORT GROUP MEETING

Who: People with Narcolepsy (PWN) and their family and friends

When: Saturday, January 29, 2011 from 10:00 a.m. — 1:00 p.m.

Where: LAHEY CLINIC MEDICAL CENTER – BURLINGTON, MA
41 Mall Road – (Alumni Conference Room)
Main Switchboard: (781) 744-5100

Why: Let’s start the New Year off with the first of hopefully several meetings!
Come join us in a celebration of what it means to live life with Narcolepsy.
Share your story or current concerns, or choose to listen to others –
this group is intended for all who attend to feel comfortable and benefit from group support.

RSVP to: Sara Kowalczyk at sknarnet@gmail.com or 617-216-9598

Directions: Access to Lahey Clinic from Route 128/I-95, north or south, is Exit 33B.
When heading south, this exit leads directly onto Mall Road.
When heading north, Exit 33B leads onto Cambridge Street (Route 3A).
At the first light, turn left onto Mall Road.
Once on Mall Road, Lahey Clinic is on the left at the third set of lights.

Parking: $5 for between 1 and 3 hours, or $8 for all day.
For further details go to: http://www.lahey.org...ParkingInfo.asp

#2 Kolleen

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Posted 10 March 2011 - 02:52 PM

Hi there, we live in western massachusetts. My 8yr old daughter has just been diagnosed. I know we missed this meeting but I was wondering how often you hold meetings and if you have an idea of when the next one will be. Thanks


#3 tdmom

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Posted 29 March 2011 - 08:12 PM

Posted Image HAPPY NEW YEAR! Posted Image

YOU’RE INVITED!

BOSTON-AREA NARCOLEPSY SUPPORT GROUP MEETING

Who: People with Narcolepsy (PWN) and their family and friends

When: Saturday, January 29, 2011 from 10:00 a.m. — 1:00 p.m.

Where: LAHEY CLINIC MEDICAL CENTER – BURLINGTON, MA
41 Mall Road – (Alumni Conference Room)
Main Switchboard: (781) 744-5100

Why: Let’s start the New Year off with the first of hopefully several meetings!
Come join us in a celebration of what it means to live life with Narcolepsy.
Share your story or current concerns, or choose to listen to others –
this group is intended for all who attend to feel comfortable and benefit from group support.

RSVP to: Sara Kowalczyk at sknarnet@gmail.com or 617-216-9598

Directions: Access to Lahey Clinic from Route 128/I-95, north or south, is Exit 33B.
When heading south, this exit leads directly onto Mall Road.
When heading north, Exit 33B leads onto Cambridge Street (Route 3A).
At the first light, turn left onto Mall Road.
Once on Mall Road, Lahey Clinic is on the left at the third set of lights.

Parking: $5 for between 1 and 3 hours, or $8 for all day.
For further details go to: http://www.lahey.org...ParkingInfo.asp



I would like to know future dates for meetings also.

#4 jobreen

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Posted 18 March 2012 - 01:02 PM

I would like to know future dates for meetings also.



Hi there! :)

My apologies for never replying to your post till now.

Although I "post" our Narcolepsy Support Group meetings, I never check for "replies"... I just assumed that if folks had questions or comments, they'd contact the "RSVP contact" for that meeting.

However, we are now trying to expand our group and meeting locations and would like to include those who are interested in being kept abreast of upcoming meetings, etc.

If you'd like to be included to our list, would you be so kind as to send me your name, email address, and location, if desired?

There is actually going to be a meeting in Worcester on April 21, I believe. And we're hoping for at least 2 meetings thereafter at either Lahey Clinic in Burlington and/or Mass General in Boston.

By having your info, we'll be glad to keep you posted!

Please send your info to: jhowes@narcolepsynetwork.org

Thanks much!