Sign in to follow this  
Followers 0
lytleab

Stories to tell? UC Students making Narcolepsy Documentary

4 posts in this topic

Hi,

I am a University of Cincinnati student studying Electronic Media. I am leading a group of students that is making an informative Documentary on Narcolepsy and the effects it has on the daily lives of its sufferers. Our goal is to inform ourselves through research, talking to doctors, and patients, about their experience, and then using the knowledge we gain, to inform others.

If anyone has a story or experience they would like to tell, please reply or email me ([email protected]). Whether you would like to appear on camera or just give advice on how to approach this topic, all comments are welcome. Thanks!

Share this post


Link to post
Share on other sites

sure, I'd love to share how my life has gone straight down hill over the past 15 years being undiagnosed, and misdiagnosed with ignorant doctors that charge more money that most make in a year. My email is [email protected] look at my profile and you can find out how else to cntact me. Thanks, and good luck. The world needs to be educated, so they don't have to go through what I've been through and others im sure.

Share this post


Link to post
Share on other sites

You have picked a good subject. It is not well known and endless. The doctors know less then the patients about it.

Share this post


Link to post
Share on other sites
You have picked a good subject. It is not well known and endless. The doctors know less then the patients about it.

At last people that talk sense, I am in the Uk and we a Ukan web site, I had a cataplectic attack at the start of my appointment

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0