Jump to content


Photo

Can 2 Year Olds Have N


  • Please log in to reply
3 replies to this topic

#1 butterflygirl

butterflygirl

    Member

  • Members
  • 20 posts
  • Gender:Female
  • Location:Wheaton, MN
  • Interests:camping, kids, pets and critters, reading, movies

Posted 02 June 2010 - 07:02 PM

I was just diagnosed with N and still can't believe after all these years of being so tired that N is the answer, but anyway, I am concerned about my daughter. She is 21 months and has always been a terrific napper to the point I was worried. On a typical day she will sleep from 9pm - 930am if uninterupted, wake and eat til 11 sleep til 1, up til 430 and sleep til 730 or so then back to bed at 9 or 930. The Dr says Im lucky she naps so good. Of couse hes the same dr that told me to exercise, drink more water and id be less tired haha! She wakes up in a great mood and has a great personality. When she is tired she will go to the baby gate and ask to go to bed. She likes to sleep in her crib by herself or in the car that is it. Am I just overly concerned? I just dont want her to have N for 25 yrs like i did and not know it. Arent kids supposed to sleep less than newborns by 2 years? Any info would be great thanks!

#2 merrymom1013

merrymom1013

    Member

  • Members
  • 150 posts

Posted 02 June 2010 - 07:47 PM

A N diagnosis in a 2 year old is very rare. Not impossible. There have been a few people with young children that have posted here in the past. It might be tough to get an accurate diagnosis- how many 2 year olds with N have had MSLTs, what are the parameters etc? Plus 2 year olds are known for acting like 2 year olds- if MSLTs aren't always accurate in diagnosing N the first time, I'm thinking them even less reliable in a 2 year old. And who wants to rush to do a spinal tap in a healthy 2 year old?
When/if you pursue the possibility, I'm thinking it would be important to do some homework to find a doctor who might be able to sort this out. Most pediatric sleep specialists would have never seen a young child with N, and many might be dismissive. I found the "experts" at our world class children's hospital to be total idiots. Even the one who told me he trained with Dr Dement. He was so expert he was sure my daughter was mentally ill instead of narcoleptic without even doing any diagnostic tests. If you know a great specialist, you are steps ahead & maybe it would be worth a consult.
Let's say she does have N- she's really a baby & I'm sure you'd hesitate to put her on medication right now. She's at an age where she can nap all she needs to. I wouldn't worry if she is developing normally & happy. I would keep some notes about her sleepiness & your concerns over time. If her sleepiness is interfering with school, play, etc as she gets older, then you might need to aggressively pursue diagnosis & treatment. As PWN, you will see the signs. Maybe it will be at 6, maybe not til high school- who knows. But she has you; she won't be 25 & wondering why she's always sleepy.
I'm not a PWN- my daughter developed symptoms at about age 10 & was diagnosed at 11. One of the things I'm grateful for is that this happened when I could ensure she got diagnosed & treated, and hopefully have her symptoms well managed before she leaves the nest (which will be for college in less than 3 months!!) So I hear your concern. I'm also an LCSW with many years working with kids with disabilities & their families. I sometimes get frustrated when parents ignore sleep problems or other issues for years at their child's expense. So, if I were you, I would wonder & be a bit concerned. But I wouldn't panic. She will give you lot's more things to worry about over time- it's what we mothers do. If her symptoms persist and she does have N, you will help her deal with it. When I get upset about my daughter having to take medication every day & struggle with narcolepsy, I remind myself that I'm blessed with a smart, funny & gorgeous kid.

#3 Tutter

Tutter

    Member

  • Members
  • 19 posts
  • Gender:Female
  • Location:Denmark, North Europe
  • Interests:Mother to girl 4 year old, who probably have narcolepsy with cataplexia. Waiting for a 3 day sleeptest in nowember 2010.

Posted 03 June 2010 - 12:37 AM

Hi
I understand your concerns and it is possible to have N even in a 2 year old, and if my daughter do have N & C her deput was at 7 mo.

But even though, I would not push to get her evaluated in her age, as it from your decribtions dose not sound like she is having great problems in her daily life. It's not a great problem if you sleep a lot when you are this young and if she dose not have symptoms of cataplexy there is no need to hurry.

And even if she is evaluated, there is a great change for a false negative result...

#4 butterflygirl

butterflygirl

    Member

  • Members
  • 20 posts
  • Gender:Female
  • Location:Wheaton, MN
  • Interests:camping, kids, pets and critters, reading, movies

Posted 23 June 2010 - 11:53 PM

Thanks for the advice. I am more concerned now however, because I've noticed when she gets startled ie: loud noises or quick movements by her kitties she falls down and has a blank expression for a few seconds and then cries. I guess we will ride it out and monitor. Obviously at 22 months it doesnt effect her life style, but when she gets closer to preschool/school it obviously will.