merrymom1013

Hyperthyroid?

6 posts in this topic

Has anyone here been diagnosed with Graves disease or hyperthyroid? My daughter's doctor tells me he's been treating narcolepsy for 30 years & has never had a narcolepsy patient who also had hyperthyroid. In his words, "She's an interesting case, which isn't what most of us want to be." His guess is that the narcolepsy will make treating the thyroid issue extra challenging & vice-versa. The constant sleepiness of narcolepsy, along with the entire body racing from the hyperthyroid has really thrown my daughter. If you'd had both conditions, I'd appreciate hearing a bit about your experience & treatment.

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Has anyone here been diagnosed with Graves disease or hyperthyroid? My daughter's doctor tells me he's been treating narcolepsy for 30 years & has never had a narcolepsy patient who also had hyperthyroid. In his words, "She's an interesting case, which isn't what most of us want to be." His guess is that the narcolepsy will make treating the thyroid issue extra challenging & vice-versa. The constant sleepiness of narcolepsy, along with the entire body racing from the hyperthyroid has really thrown my daughter. If you'd had both conditions, I'd appreciate hearing a bit about your experience & treatment.

My grandma had hyperthyroid and it's suspected that she had narcolepsy but she passed away before the N could be confirmed. Positive thoughts and well wishes for your daughter!

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Has anyone here been diagnosed with Graves disease or hyperthyroid? My daughter's doctor tells me he's been treating narcolepsy for 30 years & has never had a narcolepsy patient who also had hyperthyroid. In his words, "She's an interesting case, which isn't what most of us want to be." His guess is that the narcolepsy will make treating the thyroid issue extra challenging & vice-versa. The constant sleepiness of narcolepsy, along with the entire body racing from the hyperthyroid has really thrown my daughter. If you'd had both conditions, I'd appreciate hearing a bit about your experience & treatment.

My mom had Thyroid problems as well. She also had symptoms of N but was never diagnosed.

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I've had a Narcolepsy diagnosis for some time. Several months ago I went to a clinic and had a full blood workup on my own because I couldn't remember when the last time I had one was (I didn't have insurance...the complete workup ran about $110). I was REALLY glad I did. I now know I'm not crazy in some of the things I've been experiencing for several years...I have now been diagnosed with Hypothyroidism (my thyroid is not producing enough). I'm now taking Synthroid and WOW...world of difference in my energy level. We don't realize just how much the thyroid does and regulates. I treat my Narcolepsy naturally and have been approved to do so by my Neurologist. As always, do your own homework and be proactive in your and your daughter's medical care. (In my opinion, I would definately treat the thyroid issue as it is bound to affect her engery, hormones, Narcolepsy, etc.)

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I've been recently diagnosed with both Grave disease (Hypethyroid) and I had Narcolepsy for over 15 years.  I feel for your daughter, it's very difficult managing both.  Both disease limit your capacity level.  I've been treating Narcolepsy naturally by focusing on working out and eating well.  I limit my carb intake in the morning and afternoon because carbs just makes me tired. I stick to green tea and limit alcohol intake ( I only drink socially and it's usually one glass).  It doesn't get rid of the tiredness but it helps manage it. Two months ago, I've been diagnosed with Grave's disease, and I've been taking methimazole. it helps control the hyperthyroid symptoms.  I still feel very tired but it helps.  Luckily, my husband understands and helps me with my 16 months old so he lets me sleep on Mon-Fridays.  I try to sleep 8 hours a day and that also helps.   My advice, is just eat well, manage your cab intake, help her manage her capacity level, and see a good endocrinologist. Your daughter will have difficultly trying to do it all. In my experience I found it very difficult to study and work full time (50-75 hours a week).  I found I can manage doing one thing at a time, like focusing on just work and not studying and working.  When you have both disease it's a life changer, she will need to change her perspective in life and how she lives.  You can still achieve your dreams and goals but she'll need more support. 

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